Health Promotion Research, Steno Diabetes Center Copenhagen, Gentofte, Denmark
Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London, UK.
BMJ Open. 2021 Nov 2;11(11):e051430. doi: 10.1136/bmjopen-2021-051430.
To develop supportive interventions for adults with new-onset type 1 diabetes (T1D) to facilitate positive adaptive strategies during their transition into a life with diabetes.
The study used a co-design approach informed by Design Thinking to stimulate participants' reflections on their experiences of current care and generate ideas for new supportive interventions. Visual illustrations were used to depict support needs and challenges. Initial discussions of these needs and challenges were facilitated by researchers and people with diabetes in workshops. Data comprising transcribed audio recordings of the workshop discussions and materials generated during the workshops were analysed thematically.
Specialised diabetes centres in Denmark and the United Kingdom.
Adults with new-onset T1D (n=24) and healthcare professionals (HCPs) (n=56) participated in six parallel workshops followed by four joint workshops with adults (n=29) and HCPs (n=24) together.
The common solution prioritised by both adults with new-onset T1D and HCP participants was the development of an integrated model of care addressing the psychological and social elements of the diagnosis, alongside information on diabetes self-management. Participants also indicated a need to develop the organisation, provision and content of care, along with the skills HCPs need to optimally deliver that care. The co-designed interventions included three visual conversation tools that could be used flexibly in the care of adults with new-onset T1D to support physical, psychological and social adaptation to T1D.
This co-design study has identified the care priorities for adults who develop T1D, along with some practical conversational tools that may help guide HCPs in attending to the disruptive experience of the diagnosis and support adults in adjusting into a life with diabetes.
为新发 1 型糖尿病（T1D）患者设计支持性干预措施，以促进他们在向糖尿病生活过渡期间采用积极的适应策略。
本研究采用设计思维指导的共同设计方法，激发参与者对其现有护理体验的反思，并为新的支持性干预措施生成创意。可视化插图用于描绘支持需求和挑战。研究人员和糖尿病患者在研讨会上协助对这些需求和挑战进行初步讨论。研讨会讨论的转录音频记录和研讨会期间生成的材料构成的数据进行了主题分析。
丹麦和英国的专门糖尿病中心。
24 名新发 T1D 成人患者和 56 名医疗保健专业人员（HCP）参加了 6 个平行研讨会，之后是 4 个联合研讨会，参与者包括 29 名成人和 24 名 HCP。
新发 T1D 成人患者和 HCP 参与者共同确定的共同解决方案是开发一种综合护理模式，解决诊断的心理和社会要素，同时提供糖尿病自我管理信息。参与者还表示需要开发护理的组织、提供和内容，以及 HCP 提供最佳护理所需的技能。共同设计的干预措施包括三个可视化对话工具，可灵活用于新发 T1D 成人患者的护理中，以支持其对 T1D 的身体、心理和社会适应。
这项共同设计研究确定了新发 T1D 患者的护理重点，以及一些实用的对话工具，这些工具可能有助于指导 HCP 关注诊断的破坏性体验，并支持成年人适应糖尿病生活。
