Department of Biomedical and Neuromotor Sciences, Alma Mater Studiorum-University of Bologna, Via San Giacomo, 12, 40126, Bologna, Italy.
School of Psychology, Queen's University Belfast, Belfast, Ireland.
Acta Diabetol. 2022 Aug;59(8):1053-1061. doi: 10.1007/s00592-022-01900-4. Epub 2022 May 27.
Couples living with Type 1 diabetes: co-designing interventions to support them.
This is a qualitative study comprising two phases. Phase I represents the exploratory phase, consisting of semi-structured interviews with persons with Type 1 diabetes (N = 16) and partners (N = 6). In the second phase, co-design principles guided workshops with healthcare professionals, persons with Type 1 diabetes, and partners (N = 7) to facilitate discussion of the key themes identified and solutions to engage couples living with Type 1 diabetes in diabetes care.
The key themes identified from phase I as priorities to target in future interventions were: (i) Emotional impact of diabetes and (ii) Partners' involvement. Priority (i) captures the impact the emotional burden of diabetes management produces within couples' relationship. Priority (ii) captures the request from partners to be more involved in diabetes management. Characteristics of the interventions suggested during the co-design phase II focused on engaging patients and partners via a counseling point in healthcare settings and tailored help for couples' psychological support needs.
Couples value pro-active intervention and support from their diabetes team or primary care for both the partners to live well with Type 1 diabetes.
为支持 1 型糖尿病患者及其伴侣，共同设计干预措施。
这是一项包含两个阶段的定性研究。第一阶段为探索性阶段，包括对 1 型糖尿病患者（n=16）及其伴侣（n=6）进行半结构化访谈。在第二阶段，采用共同设计原则，组织医护人员、1 型糖尿病患者及其伴侣（n=7）参加工作坊，以促进对确定的关键主题的讨论并提出解决方案，从而使 1 型糖尿病患者的伴侣能够参与到糖尿病的护理中。
第一阶段确定的作为未来干预措施重点的关键主题是：（i）糖尿病对情绪的影响，（ii）伴侣的参与。重点（i）描述了糖尿病管理的情绪负担对夫妻关系产生的影响。重点（ii）描述了伴侣希望更多地参与糖尿病管理的愿望。在共同设计第二阶段提出的干预措施的特点集中在通过医疗保健环境中的咨询点以及为夫妻的心理支持需求提供量身定制的帮助来吸引患者和伴侣。
患者及其伴侣希望糖尿病团队或初级保健能够积极主动地为他们提供支持，以帮助他们共同应对 1 型糖尿病。
