Jung Ahrang, Kay Shelley S, Robinson Jennifer L, Sheppard Bonny Bloodgood, Mayer Deborah K
School of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, NC, 27599-7460, USA.
ICF Next, 9300 Lee Highway, Fairfax, VA, 22031, USA.
J Cancer Surviv. 2022 Dec;16(6):1236-1267. doi: 10.1007/s11764-021-01111-w. Epub 2021 Nov 4.
There are gaps in our knowledge to provide quality cancer care to the growing numbers of survivors. Leveraging existing data to answer survivorship research questions is one approach to address these gaps. Therefore, the purpose of this paper is to replicate and expand a previous report of existing cancer survivorship survey data.
We conducted a trifold search strategy for relevant surveys and data sets to (1) determine the extent to which cancer survivors are being surveyed, (2) determine the topics being covered in these surveys, and (3) create a compendium of information about these surveys and data sets, so researchers can conduct additional analyses.
Thirty-five surveys were identified and included in this report; most were longitudinal studies (71%) in adult cancer survivors (91%). The domains addressed in these surveys were general medical characteristics, medical conditions, costs, employment, symptoms and/or side effects, psychosocial factors and coping, perceived quality of care, and health behaviors.
Existing data are available for researchers to explore new knowledge to enhance cancer survivorship quality care. This is an opportunity to fully utilize existing data to answer survivorship questions in a cost effective manner.
Survivors should be encouraged to participate in research studies as these data can close the gap in our knowledge and care of this growing population.
在为越来越多的癌症幸存者提供优质癌症护理方面，我们的知识存在差距。利用现有数据来回答幸存者研究问题是弥补这些差距的一种方法。因此，本文的目的是复制并扩展之前一份关于现有癌症幸存者调查数据的报告。
我们针对相关调查和数据集开展了三重搜索策略，以（1）确定对癌症幸存者进行调查的程度，（2）确定这些调查所涵盖的主题，以及（3）创建一份关于这些调查和数据集的信息汇编，以便研究人员能够进行进一步分析。
本报告共识别并纳入了35项调查；其中大多数是针对成年癌症幸存者（91%）的纵向研究（71%）。这些调查所涉及的领域包括一般医学特征、医疗状况、费用、就业、症状和/或副作用、心理社会因素及应对方式、感知的护理质量以及健康行为。
现有数据可供研究人员探索新知识，以提高癌症幸存者的优质护理水平。这是一个以具有成本效益的方式充分利用现有数据来回答幸存者相关问题的机会。
应鼓励幸存者参与研究，因为这些数据能够缩小我们在对这一不断增长的群体的认知和护理方面的差距。
