Division of Pulmonary, Allergy, and Critical Care Medicine, Department of Medicine, University of Alabama at Birmingham, Birmingham, AL; Lung Health Center, Department of Medicine, University of Alabama at Birmingham, Birmingham, AL; Center for Palliative and Supportive Care, Division of Gerontology, Geriatrics and Palliative Care, Department of Medicine, University of Alabama at Birmingham, Birmingham, AL.
Division of Pulmonary and Critical Medicine, Oregon Health and Sciences University, Portland, OR; Center to Improve Veteran Involvement in Care, VA Portland Health Care System, Portland, OR.
Chest. 2022 May;161(5):1250-1262. doi: 10.1016/j.chest.2021.10.032. Epub 2021 Nov 3.
COPD is the fourth leading cause of death in the United States and is a serious respiratory illness characterized by years of progressively debilitating breathlessness, high prevalence of associated depression and anxiety, frequent hospitalizations, and diminished well-being. Despite the potential to confer significant quality-of-life benefits for patients and their care partners and to improve end-of-life (EOL) care, specialist palliative care is rarely implemented in COPD, and when initiated, it often occurs only at the very EOL. Primary palliative care delivered by frontline clinicians is a feasible model, but is not integrated routinely in COPD. In this review, we discuss the following: (1) the role of specialist and primary palliative care for patients with COPD and the case for earlier integration into routine practice; (2) the domains of the National Consensus Project Guidelines for Quality Palliative Care applied to people living with COPD and their care partners; and (3) triggers for initiating palliative care and practical ways to implement palliative care using case-based examples. This review solidifies that palliative care is much more than hospice and EOL care and demonstrates that early palliative care is appropriate at any point during the COPD trajectory. We emphasize that palliative care should be integrated long before the EOL to provide comprehensive support for patients and their care partners and to prepare them better for the EOL.
COPD 是美国的第四大致死原因,是一种严重的呼吸系统疾病,其特征是多年逐渐恶化的呼吸困难、相关抑郁和焦虑的高患病率、频繁住院和幸福感下降。尽管姑息治疗专家可以为患者及其护理伙伴带来显著的生活质量益处,并改善临终关怀,但在 COPD 中很少实施姑息治疗,即使开始实施,也往往只在临终时进行。由一线临床医生提供的初级姑息治疗是一种可行的模式,但在 COPD 中并未常规纳入。在这篇综述中,我们讨论了以下内容:(1)姑息治疗专家和初级姑息治疗在 COPD 患者中的作用,以及将其更早地纳入常规实践的理由;(2)适用于 COPD 患者及其护理伙伴的《国家共识项目姑息治疗质量指南》的各个领域;(3)启动姑息治疗的触发因素,以及使用基于案例的示例来实施姑息治疗的实用方法。这篇综述证实了姑息治疗不仅仅是临终关怀和临终关怀,还表明在 COPD 病程的任何阶段都可以进行早期姑息治疗。我们强调,姑息治疗应该在临终前很长一段时间内进行,以便为患者及其护理伙伴提供全面的支持,并更好地为他们准备临终阶段。