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《COVID-19 大流行期间神经发育障碍患儿父母的困扰程度:意大利和澳大利亚的比较》。

Distress Levels of Parents of Children with Neurodevelopmental Disorders during the COVID-19 Pandemic: A Comparison between Italy and Australia.

机构信息

Department of Women's and Children's Health, Uppsala University, 752 36 Uppsala, Sweden.

School of Psychiatry, University of New South Wales, Kensington 2052, Australia.

出版信息

Int J Environ Res Public Health. 2021 Oct 21;18(21):11066. doi: 10.3390/ijerph182111066.

Abstract

Parents of children with a neurodevelopmental disorder (NDD) report higher levels of distress compared to those of typically developing children. Distress levels may be heightened by the restrictions associated with the COVID-19 pandemic. However, it is unclear whether distress levels of parents varied by the diagnosis of neurodevelopmental disorder in children during the COVID-19 pandemic. This study aims to investigate whether parental distress was influenced by the type of NDD. Participants were from Australia ( = 196) and Italy ( = 200); the parents of children aged 3-18 were invited to complete an online self-reported survey which included the 6-item Kessler Psychological Distress Scale (K6) to determine parental distress. The results show that intellectual or learning disorder (ILD) is a major contributor to parental distress compared to other NDDs in both Australia and Italy. Moreover, the worsening of symptomatic changes in children with NDDs was significantly associated with parental distress. The differences between the two countries in terms of the pandemic impact, however, were not statistically significant. The results suggest that intervention strategies need to be tailored for individual clinical information and factor in the society's stringency level of anti-contagion policies to improve parental wellbeing.

摘要

与发育正常的儿童相比,患有神经发育障碍(NDD)儿童的父母报告的痛苦程度更高。与 COVID-19 大流行相关的限制可能会使痛苦程度加剧。然而,目前尚不清楚在 COVID-19 大流行期间,父母的痛苦程度是否因儿童的神经发育障碍诊断而有所不同。本研究旨在调查父母的痛苦是否受儿童神经发育障碍类型的影响。参与者来自澳大利亚(n=196)和意大利(n=200);邀请了 3-18 岁儿童的父母完成在线自我报告调查,其中包括 6 项 Kessler 心理困扰量表(K6),以确定父母的痛苦程度。结果表明,与其他 NDD 相比,智力或学习障碍(ILD)是导致澳大利亚和意大利父母痛苦的主要原因。此外,NDD 儿童症状变化的恶化与父母的痛苦显著相关。然而,这两个国家在大流行影响方面的差异在统计学上并不显著。研究结果表明,干预策略需要根据个体临床信息进行调整,并考虑社会对防疫政策的严格程度,以改善父母的幸福感。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f043/8583226/ed62bfb876ab/ijerph-18-11066-g001.jpg

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