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Autism Adulthood. 2020 Jun 1;2(2):103-105. doi: 10.1089/aut.2020.29012.jdh. Epub 2020 Jun 10.
2
Resilience Intervention for Parents of Children with Autism: Findings from a Randomized Controlled Trial of the AMOR Method.自闭症儿童家长韧性干预:AMOR 方法随机对照试验的结果。
J Autism Dev Disord. 2022 Feb;52(2):738-757. doi: 10.1007/s10803-021-04977-y. Epub 2021 Mar 28.
3
Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort.简报:COVID-19 对 ASD 患者及其照护者的影响:来自 SPARK 队列的观点。
J Autism Dev Disord. 2021 Oct;51(10):3766-3773. doi: 10.1007/s10803-020-04816-6. Epub 2021 Jan 2.
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Parenting Stress During the COVID-19 Outbreak: Socioeconomic and Environmental Risk Factors and Implications for Children Emotion Regulation.新冠疫情期间的育儿压力:社会经济和环境风险因素及其对儿童情绪调节的影响。
Fam Process. 2021 Jun;60(2):639-653. doi: 10.1111/famp.12601. Epub 2020 Sep 28.
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Stress and parenting during the global COVID-19 pandemic.全球 COVID-19 大流行期间的压力和育儿问题。
Child Abuse Negl. 2020 Dec;110(Pt 2):104699. doi: 10.1016/j.chiabu.2020.104699. Epub 2020 Aug 20.
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Psychological flexibility and inflexibility as sources of resiliency and risk during a pandemic: Modeling the cascade of COVID-19 stress on family systems with a contextual behavioral science lens.大流行期间心理灵活性与僵化作为复原力和风险的来源:从情境行为科学视角构建新冠疫情压力对家庭系统的级联模型
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Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond.应对 COVID-19 大流行及之后的挑战,培养自闭症患者及其家庭的适应力和韧性,并推动关怀创新。
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8
Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey.新冠疫情对自闭症谱系障碍患者的心理社会及行为影响:一项在线家长调查
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Americans' COVID-19 Stress, Coping, and Adherence to CDC Guidelines.美国人的 COVID-19 压力、应对方式和对 CDC 指南的遵守情况。
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The COVID-19 Pandemic: Setting the Mental Health Research Agenda.新冠疫情:设定心理健康研究议程
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新冠疫情对患有和未患有自闭症的青少年及其父母的压力、焦虑和应对方式的影响。

The impact of COVID-19 on stress, anxiety, and coping in youth with and without autism and their parents.

作者信息

Corbett Blythe A, Muscatello Rachael A, Klemencic Mark E, Schwartzman Jessica M

机构信息

Department of Psychiatry and Behavioral Sciences, Vanderbilt University Medical Center, Nashville, Tennessee, USA.

Vanderbilt University Medical Center, Vanderbilt Kennedy Center, Nashville, Tennessee, USA.

出版信息

Autism Res. 2021 Jul;14(7):1496-1511. doi: 10.1002/aur.2521. Epub 2021 Apr 29.

DOI:10.1002/aur.2521
PMID:33913261
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8237027/
Abstract

In the wake of COVID-19, the world has become a more uncertain environment-a breeding ground for stress and anxiety, especially for individuals with autism spectrum disorder (ASD). The study examined stress, anxiety, and coping in a data-driven, real-time assessment of 122 youth with and without ASD and their parents at the height of the COVID-19 shutdown and three-months later. Standardized measures were administered to ascertain stress and coping explicitly related to the pandemic (RSQ COVID-19-Child [self-report], Adult [self-report from the guardian of youth], Parent [report about child]) and anxiety (STAI-C, STAI-A). Multivariate, univariate analyses of variance and hierarchical regression were used. ASD youth endorsed more Trait anxiety and response to specific stressors (e.g., virus). Caregivers of youth with ASD (Adults) self-reported higher anxiety, yet scores were elevated for both groups. Adults of youth with ASD reported more stress, especially related to the virus, access to healthcare, and concern for the future. In the TD group, youth and adults used more Primary and Secondary Control Coping whereas ASD youth and adults used more Disengagement Coping. Adult stress was the primary predictor of parent perception of child stress as well as Child self-reported stress. While the ASD group was consistently high compared to the TD group, there were no significant changes over time for stress or anxiety. Results reveal striking differences in youth with ASD and their parents regarding stress, anxiety, and coping. Findings highlight the need for essential support, access to services, and strategies to enhance psychological and emotional well-being. LAY SUMMARY: This study examined stress, anxiety, and coping related to the COVID-19 pandemic in 61 youth with autism spectrum disorder (ASD) and 61 youth with typical development (TD) and their parents. Results showed that ASD youth reported more anxiety and stress. Adults of youth with ASD indicated higher self-reported anxiety and stress than adults of TD youth. TD youth and their parents reported using more adaptive coping strategies. Findings highlight the need for strategies to enhance psychological and emotional well-being.

摘要

在新冠疫情之后,世界变得更加不确定——成为压力和焦虑的滋生地,尤其是对于患有自闭症谱系障碍(ASD)的个体而言。该研究在新冠疫情封锁最严重时期及三个月后,对122名患有和未患有ASD的青少年及其父母进行了数据驱动的实时评估,考察了压力、焦虑和应对方式。采用标准化测量工具来明确确定与疫情相关的压力和应对方式(RSQ新冠-儿童[自我报告]、成人[青少年监护人的自我报告]、父母[关于孩子的报告])以及焦虑程度(状态-特质焦虑量表儿童版、状态-特质焦虑量表成人版)。使用了多变量、单变量方差分析和层次回归分析。患有ASD的青少年表现出更多的特质焦虑以及对特定压力源(如病毒)的反应。患有ASD青少年的照顾者(成人)自我报告的焦虑程度更高,但两组的得分均有所升高。患有ASD青少年的成人报告了更多压力,尤其是与病毒、获得医疗保健以及对未来的担忧相关的压力。在发育正常组(TD组)中,青少年和成人更多地使用主要和次要控制应对方式,而患有ASD的青少年和成人则更多地使用脱离应对方式。成人的压力是父母对孩子压力的感知以及孩子自我报告压力的主要预测因素。虽然与TD组相比,ASD组的压力和焦虑水平一直较高,但随着时间推移,压力或焦虑并无显著变化。结果揭示了患有ASD的青少年及其父母在压力、焦虑和应对方式方面存在显著差异。研究结果凸显了提供必要支持、获得服务以及采取策略来增强心理和情绪健康的必要性。

通俗总结

本研究考察了61名患有自闭症谱系障碍(ASD)的青少年、61名发育正常(TD)的青少年及其父母与新冠疫情相关的压力、焦虑和应对方式。结果显示,患有ASD的青少年报告了更多的焦虑和压力。患有ASD青少年的成人自我报告的焦虑和压力高于TD组青少年的成人。TD组青少年及其父母报告使用了更多适应性应对策略。研究结果凸显了采取策略来增强心理和情绪健康的必要性。