Pinel-Jacquemin Stéphanie, Martinez Amalia, Martinasso Maud, Katkoff Valerie, Willig Thiébaut-Noël, Zaouche Gaudron Chantal
Laboratory LISST-CERS, Université Toulouse Jean Jaurès, Toulouse, France.
Scientific Interest Group "Bébé, petite Enfance en COntextes," GIS BECO-Université Fédérale de Toulouse Midi-Pyrénées, Toulouse, France.
Front Psychol. 2022 Apr 26;13:781030. doi: 10.3389/fpsyg.2022.781030. eCollection 2022.
Families with young children have faced serious challenges during the first lockdown as a result of the COVID-19 pandemic. In addition to remote working, parents have had to monitor their children's schoolwork and manage their daily lives. When one of the children also has neuro-developmental disorders, this results in an increased burden. We can therefore wonder how these families with one or more young children (under 6 years old) with special needs have experienced and dealt with this lockdown.
In this context, the "COVJEUNENFANT" study focused more specifically on the subjective experience, as a parent, of those who cared for children with special needs (i.e., with developmental disorders, neurodevelopmental disorders, proven disabilities or chronic health conditions) compared to the general population. We wished to see if the consequences of the health crisis were significantly different from those perceived by respondents in the general population ( = 490) and if the sociodemographic structure of these families differed from those of other respondents.
Ninety three French families with at least one child under 6 years old and one with developmental difficulties or a chronic illness, from a cohort of 490 control families, participated in a web-based survey during the first lockdown, from the 28th April 2020 to 29th May 2020.
After presenting the participants' sociodemographic characteristics, the results show that these French families ( = 93) are less wealthy than the control population "without special needs" ( = 397), have felt more pressures originating from their environment (families, friends, colleagues, media, social networks…), have suffered from more health issues (other than COVID-19), have taken more measures to protect themselves (social-distancing), and were less likely to feel happy. A significantly larger number of them lamented the lack of free time and voiced a larger need for information regarding children's education. However, their parental role was felt as being more satisfying and their family relations strengthened more than in the general population of participants.
It is apparent that urgent prioritisation is needed in order to support and care for these families by continuing to provide care for their children in one way or another, and by ensuring that their need to adapt again does not exceed their own abilities and resources, especially as young children, who have high levels of requirements, are present in the home.
由于新冠疫情,有幼儿的家庭在首次封锁期间面临了严峻挑战。除了远程工作外,家长还必须监督孩子的学业并管理他们的日常生活。当其中一个孩子患有神经发育障碍时,这会导致负担加重。因此,我们不禁要问,这些有一个或多个特殊需求(6岁以下)幼儿的家庭是如何经历和应对这次封锁的。
在这种背景下,“COVJEUNENFANT”研究更具体地关注了与普通人群相比,照顾有特殊需求儿童(即患有发育障碍、神经发育障碍、已确诊残疾或慢性健康状况的儿童)的家长的主观体验。我们希望了解健康危机的后果是否与普通人群(n = 490)的受访者所感知的有显著差异,以及这些家庭的社会人口结构是否与其他受访者不同。
在2020年4月28日至2020年5月29日的首次封锁期间,来自490个对照家庭队列中的93个法国家庭参与了一项网络调查,这些家庭至少有一个6岁以下的孩子,且其中一个孩子有发育困难或慢性病。
在介绍了参与者的社会人口特征后,结果显示这些法国家庭(n = 93)比“无特殊需求”的对照人群(n = 397)更不富裕,感受到来自周围环境(家人、朋友、同事、媒体、社交网络……)的压力更大,患有更多健康问题(除新冠疫情外),采取了更多保护措施(社交距离),并且不太可能感到幸福。他们中明显更多的人抱怨缺乏空闲时间,并表示对儿童教育信息有更大需求。然而,与普通参与者群体相比,他们觉得父母角色更令人满意,家庭关系也得到了更大加强。
显然,需要紧急优先考虑以某种方式继续为这些家庭的孩子提供照料,并确保他们再次适应的需求不超过自身能力和资源,从而支持和照顾这些家庭,特别是因为家中有需求很高的幼儿。