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巴西唇腭裂活产全景:十年随访及卫生系统中的不平等现象

The Panorama of Cleft Lip and Palate Live Birth in Brazil: Follow-up of a 10-Year Period and Inequalities in the Health System.

作者信息

Silva Raquel S, Macari Soraia, Dos Santos Thiago R, Werneck Marcos A F, Pinto Rafaela da Silveira

机构信息

School of Dentistry, 28114Federal University of Minas Gerais, Belo Horizonte, MG, Brazil.

Institute of Exact Sciences (ICEx), 28114Federal University of Minas Gerais, Belo Horizonte, MG, Brazil.

出版信息

Cleft Palate Craniofac J. 2022 Dec;59(12):1490-1501. doi: 10.1177/10556656211050004. Epub 2021 Nov 17.

Abstract

OBJECTIVE

To provide the prevalence and an overview of cleft lip and palate (CL/P) in the period of 2008 to 2017, as well as the profile of care provided for this condition in Brazil.

DESIGN

Cross-sectional study of epidemiological character.

SETTING

Brazilian government website.

PARTICIPANTS

National Live Birth and Hospital Information System.

INTERVENTION

Organization of the end databases and performance-based statistical analysis.

MAIN OUTCOME MEASURE(S): Analysis of the prevalence of CL/P in newborns, sociodemographic condition of the mothers, surgical procedures and hospitalizations, and specialized hospitals in Brazil within a 10-year period.

RESULTS

The average prevalence of CL/P in Brazil was ∼52 children per 100 000 live births in the covered period, corresponding to 1 per 1924 newborns. The presence of cleft was associated with preterm birth, being underweight, and the male gender. The highest prevalence was found in the South region, while the lowest was found in the Northeast region, with increasing rates in the North region of Brazil. The states with the highest prevalence were not those with a great number of hospitalizations and surgical procedures for live births with CL/P.

CONCLUSION

In the 10-year study period, the prevalence of CL/P was 0.52 newborns per 1000 live births, a result which differs among the states of Brazil. The need to reinforce the national monitoring of the prevalence and surgical procedures of cleft patients have also emphasized the need to improve public medical care for CL/P subjects.

摘要

目的

提供2008年至2017年期间唇腭裂(CL/P)的患病率及概况,以及巴西针对该病症所提供的护理情况。

设计

具有流行病学特征的横断面研究。

地点

巴西政府网站。

参与者

国家活产与医院信息系统。

干预措施

整理最终数据库并进行基于绩效的统计分析。

主要观察指标

分析10年间巴西新生儿唇腭裂的患病率、母亲的社会人口学状况、手术程序和住院情况以及专科医院情况。

结果

在涵盖期间,巴西唇腭裂的平均患病率约为每10万活产儿中有52名儿童,即每1924名新生儿中有1例。唇腭裂的出现与早产、体重不足和男性性别有关。患病率最高的是南部地区,最低的是东北部地区,巴西北部地区患病率呈上升趋势。患病率最高的州并非唇腭裂活产儿住院和手术数量最多的州。

结论

在10年的研究期内,唇腭裂的患病率为每1000例活产儿中有0.52例新生儿,这一结果在巴西各州有所不同。加强对唇腭裂患者患病率和手术程序的国家监测的必要性也强调了改善唇腭裂患者公共医疗护理的必要性。

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