Hospital Affiliated to Shandong University of Traditional Chinese Medicine, Jinan, Shandon Province 250012, China.
School of Nursing and Rehabilitation, Cheeloo College of Medicine, Shandong University, Jinan, Shandong Province 250012, China.
Epilepsy Behav. 2021 Dec;125:108417. doi: 10.1016/j.yebeh.2021.108417. Epub 2021 Nov 15.
This study quantified caregiver burdens and the positive aspects of caregiving for the parents of children with epilepsy, with a focus on the impacts of family resilience as a protective factor for the caring process.
This cross-sectional study was conducted among 173 parents of children with epilepsy, all of whom responded to questionnaires containing the shortened Chinese version of the Family Resilience Assessment Scale (FRAS-C), positive aspects of caregiving scale (PAC), and Chinese version of the Zarit Caregiver Burden Interview (CZBI). They also provided relevant sociodemographic data.
The mean CZBI total score was 22.16 (SD, 14.26; range, 0-71), while the mean PAC total score was 40.05 (SD, 11.09; range 11-55). The FRAS-C total score was positively correlated with the PAC total score (r = 0.368, p < 0.001), but negatively correlated with the CZBI total score (r = -0.301, p < 0.001). A multiple linear regression analysis showed that family resilience explained PAC and CZBI at rates of 11.4% and 5.5%, respectively.
Parents have both positive and negative experiences when caring for children with epilepsy. In this context, family resilience may enhance the positive aspects of caregiving while reducing the frequency of negative feelings, thus highlighting the need for clinicians to focus on adequate interventions aimed at improving family resilience.
本研究量化了癫痫患儿父母的照顾者负担和照顾的积极方面，重点关注家庭韧性作为照顾过程保护因素的影响。
这是一项横断面研究，共纳入 173 名癫痫患儿的父母，他们均对包含家庭韧性评估量表（FRAS-C）缩短中文版、照顾积极方面量表（PAC）和中文版照顾者负担量表（CZBI）的问卷做出回应。他们还提供了相关的社会人口学数据。
平均 CZBI 总分 22.16（标准差 14.26；范围 0-71），而平均 PAC 总分 40.05（标准差 11.09；范围 11-55）。FRAS-C 总分与 PAC 总分呈正相关（r=0.368，p<0.001），与 CZBI 总分呈负相关（r=-0.301，p<0.001）。多元线性回归分析显示，家庭韧性分别解释了 PAC 和 CZBI 的 11.4%和 5.5%。
父母在照顾癫痫患儿时既有积极的体验，也有消极的体验。在这种情况下，家庭韧性可以增强照顾的积极方面，同时减少消极感受的频率，这突出表明临床医生需要关注旨在提高家庭韧性的充分干预措施。
