School of Nursing and Rehabilitation, Cheeloo College of Medicine, Shandong University, Jinan, Shandong Province 250012, China.
School of Nursing and Rehabilitation, Cheeloo College of Medicine, Shandong University, Jinan, Shandong Province 250012, China.
Epilepsy Behav. 2022 Oct;135:108873. doi: 10.1016/j.yebeh.2022.108873. Epub 2022 Aug 13.
Parents caring for children with epilepsy have poor sleep quality and experience a certain level of caregiving burden. Individual resilience is a crucial psychological variable that contributes to health during extraordinary challenges. This study aimed to determine the relationships among individual resilience, caregiver burden, and sleep quality.
This was a descriptive cross-sectional study with a convenience sample, following the STROBE guidelines. One hundred and ninety-one parents of children with epilepsy were invited to participate in the study. Of these, 173 participants completed measures of sleep quality, caregiver burden, and individual resilience. Path analysis was performed to probe the indirect relationship between individual resilience and sleep quality via caregiver burden.
Correlation analysis revealed that individual resilience total scores were significantly and marginally negatively correlated with caregiver burden and sleep quality total scores (r = -0.215, P <.01; r = -0.250, P <.01). Moreover, there was a significant moderate positive correlation between the total caregiver burden scores and total sleep quality scores (r = 0.389, P <.001). The path model showed that individual resilience is indirectly associated with sleep quality via caregiver burden.
The higher the level of individual resilience, the less the caregiver burden and the better the sleep quality for parents of children with epilepsy.
照顾癫痫患儿的家长睡眠质量较差，且存在一定程度的照护负担。个体韧性是一个重要的心理变量，有助于在面临特殊挑战时保持健康。本研究旨在确定个体韧性、照护负担和睡眠质量之间的关系。
本研究采用描述性横断面研究设计，采用便利抽样法，遵循 STROBE 指南。邀请了 191 名癫痫患儿的家长参与研究。其中，173 名参与者完成了睡眠质量、照护负担和个体韧性的测量。采用路径分析方法探讨了个体韧性通过照护负担对睡眠质量的间接关系。
相关性分析显示，个体韧性总分与照护负担和睡眠质量总分呈显著负相关（r=-0.215，P<.01；r=-0.250，P<.01）。此外，照护负担总分和睡眠质量总分之间存在显著中度正相关（r=0.389，P<.001）。路径模型显示，个体韧性通过照护负担与睡眠质量呈间接相关。
癫痫患儿家长的个体韧性水平越高，照护负担越低，睡眠质量越好。
