Gynaecology Department, Women's Hospital of Nanjing Medical University (Nanjing Maternity and Child Health Care Hospital), Nanjing, People's Republic of China.
School of Health Sciences, Faculty of Health and Medical Sciences, The University of Surrey, Guildford, UK.
Support Care Cancer. 2023 Sep 26;31(10):591. doi: 10.1007/s00520-023-08057-y.
This study investigated the mediating role of individual resilience in the relationship between caregiver burden and quality of life (QoL) among Chinese adult children providing care to their parents with advanced cancer, with the aim to inform effective coping strategies and positive caregiving outcomes.
In a cross-sectional design, 614 caregivers from multiple centers, whose parents were undergoing chemotherapy and/or radiotherapy, completed questionnaires encompassing demographics, caregiver burden, symptoms of anxiety and depression, resilience, and QoL.
Findings revealed a moderate level of caregiver burden among participants, significantly influenced by factors including education level, family income, single-child status, and participation in social media patient support groups. Caregivers who were only children or involved in patient support groups reported higher burden. Importantly, path analysis showed a significant impact of caregiver burden, anxiety, and depression on QoL, with these relationships being mediated by individual resilience.
Chinese adult child caregivers face a considerable burden, negatively influencing their QoL. Individual resilience, a modifiable factor, was identified as a critical mediator in this relationship, mitigating the negative implications of caregiver burden, anxiety, and depression. These findings underscore the need for caregiver interventions that consider not only demographics but also the socio-psychological dynamics of caregiving to enhance caregiver QoL.
本研究旨在探讨个体韧性在照顾者负担与为晚期癌症父母提供照护的中国成年子女生活质量（QoL）之间的关系中的中介作用，以期为制定有效的应对策略和实现积极的照护结果提供依据。
采用横断面设计，614 名来自多个中心的照顾者完成了涵盖人口统计学、照顾者负担、焦虑和抑郁症状、韧性和 QoL 的问卷。
研究结果显示，参与者的照顾者负担处于中等水平，受到包括教育水平、家庭收入、独生子女状况和参与社交媒体患者支持小组等因素的显著影响。独生子女或参与患者支持小组的照顾者报告的负担较高。重要的是，路径分析显示，照顾者负担、焦虑和抑郁对 QoL 有显著影响，个体韧性在这些关系中起中介作用。
中国成年子女照顾者面临相当大的负担，对其 QoL 产生负面影响。个体韧性是一个可调节的因素，被确定为这种关系的关键中介因素，减轻了照顾者负担、焦虑和抑郁的负面影响。这些发现强调了需要针对照顾者的干预措施，不仅要考虑人口统计学因素，还要考虑照顾的社会心理动态，以提高照顾者的 QoL。
