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银屑病瘙痒的干扰性:关于单一症状对生活质量影响的定性研究

The Disruptiveness of Itchiness from Psoriasis: A Qualitative Study of the Impact of a Single Symptom on Quality of Life.

作者信息

Taliercio Vanina L, Snyder Ashley M, Webber Lisa B, Langner Adelheid U, Rich Bianca E, Beshay Abram P, Ose Dominik, Biber Joshua E, Hess Rachel, Rhoads Jamie L W, Secrest Aaron M

机构信息

Drs. Taliercio, Beshay, Rhoads, and Secrest, Ms. Snyder, and Ms. Webber are with the Department of Dermatology at the University of Utah in Salt Lake City, Utah.

Ms. Langner and Ms. Rich are with the School of Medicine at the University of Utah in Salt Lake City, Utah.

出版信息

J Clin Aesthet Dermatol. 2021 Jun;14(6):42-48. Epub 2021 Jun 1.

Abstract

BACKGROUND

Pruritus is the most common symptom of psoriasis, with a significant impact on patient quality of life. In spite of this, the severity, persistence, and overall impact of itchiness has only been rarely formally assessed during standard psoriasis clinic visits. Objectives: We sought to understand the far-reaching impacts of itchiness on the lives of those with psoriasis and their families.

METHODS

We conducted a qualitative study with five focus groups and 10 semi-structured interviews from August 2018 to January 2019. We enrolled 25 individuals with a diagnosis of at least moderate plaque psoriasis and 11 family members (primarily significant others). Views and experiences were analyzed thematically via content analysis.

RESULTS

Itchiness considerably impacts those with plaque psoriasis and their families. Our narrative analysis produced three main themes relating to itchiness: the triggers of itchiness, including climate, emotions, and behaviors; the physical consequences of itchiness, including disruption of emotional well-being, sleep disturbance, and daily activities; and the prevention and treatment strategies used to alleviate itchiness.

CONCLUSION

Itchiness impacts the quality of life in those with psoriasis and their family members. We strongly urge clinicians to inquire about and monitor the severity and impact of itchiness in psoriasis patients.

摘要

背景

瘙痒是银屑病最常见的症状,对患者的生活质量有重大影响。尽管如此,在标准的银屑病门诊就诊期间,瘙痒的严重程度、持续时间和总体影响很少得到正式评估。目的:我们试图了解瘙痒对银屑病患者及其家人生活的深远影响。

方法

我们在2018年8月至2019年1月期间进行了一项定性研究,包括五个焦点小组和10次半结构化访谈。我们招募了25名被诊断为至少中度斑块状银屑病的个体和11名家庭成员(主要是重要他人)。通过内容分析对观点和经历进行了主题分析。

结果

瘙痒对斑块状银屑病患者及其家人有相当大的影响。我们的叙事分析产生了与瘙痒相关的三个主要主题:瘙痒的触发因素,包括气候、情绪和行为;瘙痒的身体后果,包括情绪健康的干扰、睡眠障碍和日常活动;以及用于缓解瘙痒的预防和治疗策略。

结论

瘙痒会影响银屑病患者及其家庭成员的生活质量。我们强烈敦促临床医生询问并监测银屑病患者瘙痒的严重程度和影响。

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Quality of Life Among Family of Patients with Atopic Dermatitis and Psoriasis.特应性皮炎和银屑病患者家庭的生活质量
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