School of Nursing, 16077The University of Alabama at Birmingham, Birmingham, AL, USA.
Chronic Illn. 2023 Mar;19(1):95-101. doi: 10.1177/17423953211060257. Epub 2021 Nov 23.
Cystic fibrosis is a chronic, genetic disease that primarily affects the respiratory system. The coronavirus disease 2019 pandemic has altered how people with cystic fibrosis receive healthcare. This paper explores the perceptions of cystic fibrosis healthcare providers and partners of women with cystic fibrosis regarding the use of telehealth in routine cystic fibrosis healthcare in the US.
As part of a larger study examining fertility counseling for women with cystic fibrosis, we conducted qualitative, semi-structured interviews. Participants included partners of women with cystic fibrosis (n = 20) and cystic fibrosis healthcare providers (n = 20). We completed the interviews before and during the global coronavirus disease 2019 pandemic. We analyzed the data using thematic analysis.
When in-person healthcare could not be achieved safely, partners and healthcare providers found new value in telehealth. Three themes emerged: (1) increased connection between healthcare team and family, (2) increased efficiency of healthcare appointments, and (3) improved interdisciplinary collaboration. Partners found that telehealth allowed for more engagement in their significant others' healthcare. Providers reported enhanced efficiency and opportunities for collaboration across specialties that improved healthcare delivery and care coordination.
Results from this study highlighted the positive value of telehealth. Telehealth presents as a potential alternative to delivering outpatient care for people with chronic illnesses beyond the pandemic.
囊性纤维化是一种慢性遗传性疾病,主要影响呼吸系统。2019 年冠状病毒病大流行改变了囊性纤维化患者接受医疗保健的方式。本文探讨了美国囊性纤维化医疗保健提供者和囊性纤维化女性患者的伴侣对远程医疗在常规囊性纤维化医疗保健中的使用的看法。
作为一项研究囊性纤维化女性生育咨询的更大研究的一部分,我们进行了定性、半结构化访谈。参与者包括囊性纤维化女性的伴侣(n=20)和囊性纤维化医疗保健提供者(n=20)。我们在全球 2019 年冠状病毒病大流行之前和期间完成了这些访谈。我们使用主题分析方法对数据进行分析。
当无法安全地进行面对面医疗保健时,伴侣和医疗保健提供者发现远程医疗具有新的价值。出现了三个主题:(1)医疗团队和家庭之间的联系增加,(2)医疗预约效率提高,(3)跨学科合作改善。伴侣发现远程医疗使他们能够更多地参与其伴侣的医疗保健。提供者报告说,效率提高了,跨专业合作的机会增加了,这改善了医疗服务提供和护理协调。
这项研究的结果强调了远程医疗的积极价值。远程医疗提供了一种在大流行之外为慢性病患者提供门诊护理的潜在替代方案。