Faculty of Medicine, University of Belgrade, Belgrade, Serbia -
Institute for Rehabilitation, Belgrade, Serbia -
Eur J Phys Rehabil Med. 2021 Dec;57(6):1036-1044. doi: 10.23736/S1973-9087.21.07121-5. Epub 2021 Nov 26.
Muscular dystrophies present a group of inherited degenerative disorder that are characterized by progressive muscular weakness. This evidence-based position paper represents the official position of the European Union through the UEMS PRM Section. The aim of the paper is to evaluate the role of the physical and rehabilitation medicine (PRM) physician and PRM practice for people with muscular dystrophies. A systematic review of the literature and a consensus procedure by means of a Delphi process have been performed involving the delegates of all European countries represented in the UEMS PRM Section. The systematic literature review is reported together with thirty-three recommendations resulting from the Delphi procedure. The role of the PRM physician is to assess the functional status of persons with muscular dystrophy and to plan, monitor and lead PRM program in an interdisciplinary setting within a multiprofessional team.
肌肉萎缩症是一组遗传性退行性疾病，其特征是进行性肌肉无力。本循证立场文件代表 UEMS PRM 科通过欧盟的官方立场。本文的目的是评估物理医学与康复（PRM）医师和 PRM 实践在肌肉萎缩症患者中的作用。通过欧洲医学科学院 PRM 科代表的代表进行了文献系统回顾和通过 Delphi 程序进行的共识程序。系统文献回顾与来自 Delphi 程序的三十三项建议一起报告。PRM 医师的作用是评估肌肉萎缩症患者的功能状态，并在多专业团队的跨学科环境中规划、监测和领导 PRM 计划。
