Rutherford Marion, Maciver Donald, Johnston Lorna, Prior Susan, Forsyth Kirsty
School of Health Sciences, Queen Margaret University, Edinburgh EH21 6UU, UK.
Additional Support for Learning Service, Communities and Families, City of Edinburgh Council, Edinburgh EH8 8BG, UK.
Children (Basel). 2021 Nov 11;8(11):1033. doi: 10.3390/children8111033.
There is a variable standard of access to quality neurodevelopmental assessment and diagnosis. People may have negative experiences, encountering lengthy waiting times, and inconsistent practices. Practitioners need guidance on standards and practices for assessment and diagnosis matched to new ways of working. In this paper, we present a new pathway and recommendations for multidisciplinary neurodevelopmental assessment and diagnosis for children and young people (<19 years), developed by the Scottish Government funded National Autism Implementation Team (NAIT). Our research used the Medical Research Council guidance for the development of complex interventions and included several iterative stages. Stage 1: = 44 stakeholders attended an event on developing new practices for diagnosis and assessment. Stage 2: a literature synthesis was completed by the research team of clinical guidelines and diagnosis and assessment tools. Stage 3: an event with = 127 stakeholders included discussion and debate of the data from stages 1 and 2. Recommendations and a draft pathway were written. Stage 4: successive drafts of recommendations and the pathway documentation were circulated among an advisory group, including multidisciplinary clinical experts and people with lived experience, until the final pathway was agreed upon. The finalised pathway includes guidance on terminology, assessment, diagnosis, triage, time standards and engagement of people with lived experience. The new pathway has been adopted by the Scottish Government. The pathway and associated documentation are freely available online for use by others.
获得高质量神经发育评估和诊断的标准参差不齐。人们可能会有负面经历，比如等待时间过长以及做法不一致。从业者需要在与新工作方式相匹配的评估和诊断标准及做法方面获得指导。在本文中，我们展示了一条由苏格兰政府资助的国家自闭症实施团队（NAIT）为儿童和青少年（<19岁）制定的多学科神经发育评估和诊断的新途径及建议。我们的研究采用了医学研究理事会关于复杂干预措施开发的指南，并包括几个迭代阶段。第一阶段：44名利益相关者参加了一次关于制定新的诊断和评估做法的活动。第二阶段：研究团队完成了临床指南以及诊断和评估工具的文献综述。第三阶段：一次有127名利益相关者参加的活动包括对第一阶段和第二阶段数据的讨论和辩论。撰写了建议和一份途径草案。第四阶段：建议和途径文件的后续草案在一个咨询小组中传阅，该小组包括多学科临床专家和有实际经验的人，直到最终途径达成一致。最终确定的途径包括关于术语、评估、诊断、分诊、时间标准以及有实际经验的人的参与等方面的指导。这条新途径已被苏格兰政府采用。该途径及相关文件可在网上免费获取供他人使用。
