Center for Health Technology and Services Research (CINTESIS.UA), Department of Education and Psychology, University of Aveiro, Aveiro, Portugal.
Department of Psychology, East Carolina University, Greenville, North Carolina, USA.
J Clin Nurs. 2022 Dec;31(23-24):3454-3463. doi: 10.1111/jocn.16172. Epub 2021 Dec 12.
This study aimed to explore the stressors and coping strategies of adult children who care for their parents with end-stage renal disease (ESRD) undergoing in-centre haemodialysis.
Given the growing number of older patients with ESRD, adult children are increasingly providing more care and assistance to their parents with this condition. However, little is still known about the experiences of caring for a parent undergoing haemodialysis.
A qualitative exploratory study was conducted in accordance with the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines.
Semi-structured face-to-face interviews with nineteen adult children (44.9 ± 11.7 years old) were carried out. Data were transcribed verbatim and subjected to thematic analysis.
Four stressors (managing disease and treatment-related requirements, patients' reaction to treatment, lack of support from family members, and additional challenges to personal and family life) and five coping strategies (active coping and planning, seeking social support for emotional use, accepting the situation as it is, venting emotions, and maintaining interests outside caring) were identified.
Caring for a parent undergoing haemodialysis is an experience with several challenges, marked by educational needs, emotional distress, lack of support from close relatives and the need to manage multiple responsibilities.
Findings highlight the importance of developing interdisciplinary educational and supportive interventions to support this group of caregivers. These interventions should facilitate access to disease and treatment-related information, provide emotional support, and train coping skills to prevent burden and promote healthy adjustment to the demands of ESRD care.
本研究旨在探讨照顾中心血液透析终末期肾病（ESRD）父母的成年子女的压力源和应对策略。
随着老年 ESRD 患者数量的增加，成年子女越来越多地为患有这种疾病的父母提供更多的护理和帮助。然而，对于照顾正在接受血液透析的父母的经历，我们仍然知之甚少。
根据《定性研究报告的统一标准》（COREQ）指南进行了定性探索性研究。
对 19 名成年子女（44.9±11.7 岁）进行了半结构化面对面访谈。逐字转录数据，并进行主题分析。
确定了四个压力源（管理疾病和治疗相关要求、患者对治疗的反应、家庭成员缺乏支持以及个人和家庭生活的额外挑战）和五个应对策略（积极应对和计划、寻求社会支持以获得情感支持、接受现状、发泄情绪以及在照顾之外保持兴趣）。
照顾正在接受血液透析的父母是一种充满挑战的经历，其特点是教育需求、情绪困扰、亲密亲属缺乏支持以及需要管理多项责任。
研究结果强调了制定跨学科教育和支持干预措施的重要性，以支持这群照顾者。这些干预措施应促进获得疾病和治疗相关信息，提供情感支持，并培训应对技能，以防止负担过重，促进健康应对 ESRD 护理的需求。
