Department of Psychology, Miami University, Oxford, Ohio, USA.
Disabil Rehabil. 2022 Dec;44(26):8450-8462. doi: 10.1080/09638288.2021.2012604. Epub 2021 Dec 14.
Few available measures include culturally salient stressors and support systems for caregivers of offspring with disabilities in Asia. The purpose of this study was to develop and validate a self-report measure that included relevant stressors and sources of support for caregivers of offspring with disabilities.
Open-ended interviews with eight caregivers in Singapore, along with existing measures were used to develop items. The original 34 items were administered to caregivers of offspring with disabilities in Singapore ( = 234, 85% mothers). Based on an examination of factor loadings, internal consistency, and feedback from professionals, the scale was revised and administered to 370 caregivers (78% mothers), along with other measures of stress, support, depression, and well-being.
Exploratory factor analysis of the original 34-item scale yielded two factors, Sources of Stress and Sources of Support. After scale revision, confirmatory factor analysis showed that a two-factor structure demonstrated a fair fit. The subscales showed adequate internal consistency and test-retest reliability, and significant associations in expected directions with other measures of stress and support, as well as with depressive symptoms and well-being.
The measure has adequate reliability and validity, with implications for use by local service providers.Implications for rehabilitationCaregivers face unique challenges, such as stressors associated with caregiving, with varying support systems available to reduce the stress.A psychometrically-sound measure can be used to assess sources of stress and support, monitor services, and address service gaps for caregivers.The Sources of Caregiver Stress and Support Scale is a contextually-sensitive self-report measure for caregivers of people with disabilities in Singapore.
在亚洲，很少有针对残疾儿童照顾者的、包含文化上有意义的压力源和支持系统的可用措施。本研究旨在开发和验证一种自我报告的测量工具，其中包括残疾儿童照顾者的相关压力源和支持来源。
对新加坡的 8 名照顾者进行开放式访谈，并结合现有措施来开发项目。最初的 34 个项目被用于新加坡残疾儿童照顾者（n=234，85%为母亲）。基于对因子负荷、内部一致性和专业人员反馈的检查，对量表进行了修订，并对 370 名照顾者（78%为母亲）以及其他压力、支持、抑郁和幸福感的测量进行了评估。
对原始 34 项量表的探索性因子分析得出两个因子，即压力源和支持源。经过量表修订后，验证性因子分析表明，两因素结构具有较好的拟合度。子量表显示出足够的内部一致性和重测信度，与其他压力和支持测量以及与抑郁症状和幸福感呈预期方向的显著关联。
该测量工具具有足够的信度和效度，对当地服务提供者具有应用意义。
照顾者面临独特的挑战，例如与照顾相关的压力源，以及不同的支持系统来减轻压力。一种具有心理测量学意义的测量工具可用于评估压力源和支持源、监测服务以及解决照顾者的服务缺口。《照顾者压力和支持来源量表》是新加坡残疾人士照顾者的一种具有上下文敏感性的自我报告测量工具。
