Dahò Margherita
Department of Cognitive Sciences, Psychology, Educational and Cultural Studies (COSPECS), University of Messina, Messina, Italy; CRISCAT (International Research Center for Theoretical and Applied Cognitive Sciences) University of Messina and Universitary Consortium of Eastern Mediterranean, Noto, IT.
Clin Neuropsychiatry. 2021 Feb;18(1):55-64. doi: 10.36131/cnfioritieditore20210105.
Congenital anomalies are the principal cause of neonatal mortality in the United States. Families who decide to continue gestation and reject termination of pregnancy benefit from the experience of Perinatal Hospice (PH). There are no current studies that show if there may be positive outcomes for care-providers as well. The first step is exploration of their emotive experiences and representations beyond burnout or stress disorders and the possible negative outcomes. With this aim, semi-structured interviews were conducted with 10 specialists. An Elementary Context analysis was performed with T-Lab software. Providers experience positive elements even though they work in a painful reality and face the possibility of 'failure' of medical science or the loss of a patient. They declare themselves to be satisfied and do not demonstrate deep suffering or particular psychophysical disorders. They consider their job as a 'gift'. There is a lack of research exploring the encouraging aspects of their work, such as coping strategies or positive emotions.
先天性异常是美国新生儿死亡的主要原因。决定继续妊娠并拒绝终止妊娠的家庭受益于围产期临终关怀（PH）的体验。目前尚无研究表明这对护理人员是否也可能产生积极结果。第一步是探索他们在职业倦怠或应激障碍之外的情感体验和表现，以及可能的负面结果。出于这个目的，对10位专家进行了半结构化访谈。使用T-Lab软件进行了基本情境分析。尽管护理人员在痛苦的现实中工作，面临医学“失败”或患者死亡的可能性，但他们仍体验到积极的因素。他们表示自己很满意，没有表现出深刻的痛苦或特殊的身心障碍。他们将自己的工作视为一份“礼物”。目前缺乏对他们工作中令人鼓舞的方面的研究，比如应对策略或积极情绪。
