• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

深入了解儿科丧亲父母随访对话的内容和体验:系统评价。

Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review.

机构信息

Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.

出版信息

Acta Paediatr. 2022 Apr;111(4):716-732. doi: 10.1111/apa.16248. Epub 2022 Feb 7.

DOI:10.1111/apa.16248
PMID:34995378
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9304260/
Abstract

AIM

A follow-up conversation with bereaved parents is a relatively well-established intervention in paediatric clinical practice. Yet, the content and value of these conversations remain unclear. This review aims to provide insight into the content of follow-up conversations between bereaved parents and regular healthcare professionals (HCPs) in paediatrics and how parents and HCPs experience these conversations.

METHODS

Systematic literature review using the methods PALETTE and PRISMA. The search was conducted in PubMed and CINAHL on 3 February 2021. The results were extracted and integrated using thematic analysis.

RESULTS

Ten articles were included. This review revealed that follow-up conversations are built around three key elements: (1) gaining information, (2) receiving emotional support and (3) facilitating parents to provide feedback. In addition, this review showed that the vast majority of parents and HCPs experienced follow-up conversations as meaningful and beneficial for several reasons.

CONCLUSION

An understanding of what parents and HCPs value in follow-up conversations aids HCPs in conducting follow-up conversations and improves care for bereaved parents by enhancing the HCPs' understanding of parental needs.

摘要

目的

与丧亲父母进行后续对话是儿科临床实践中一种相对成熟的干预措施。然而,这些对话的内容和价值仍不清楚。本综述旨在深入了解儿科中丧亲父母与常规医疗保健专业人员(HCP)之间的后续对话的内容,以及父母和 HCP 对这些对话的体验。

方法

使用 PALETTE 和 PRISMA 方法进行系统文献综述。于 2021 年 2 月 3 日在 PubMed 和 CINAHL 中进行了检索。使用主题分析对结果进行提取和整合。

结果

共纳入 10 篇文章。本综述表明,后续对话围绕三个关键要素构建:(1)获取信息,(2)获得情感支持,(3)促进父母提供反馈。此外,本综述还表明,绝大多数父母和 HCP 认为后续对话具有重要意义和益处,原因有几个。

结论

了解父母和 HCP 在后续对话中重视的内容,有助于 HCP 进行后续对话,并通过增强 HCP 对父母需求的理解,改善对丧亲父母的护理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/db39/9304260/009f54191206/APA-111-716-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/db39/9304260/009f54191206/APA-111-716-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/db39/9304260/009f54191206/APA-111-716-g002.jpg

相似文献

1
Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review.深入了解儿科丧亲父母随访对话的内容和体验:系统评价。
Acta Paediatr. 2022 Apr;111(4):716-732. doi: 10.1111/apa.16248. Epub 2022 Feb 7.
2
Parents' experiences of psychotherapeutic support on the neonatal unit: A mixed methods systematic review to inform intervention development for a multicultural population.父母在新生儿病房接受心理治疗支持的经历:一项混合方法的系统评价,为多元文化人群的干预发展提供信息。
Nurs Crit Care. 2025 May;30(3):e13194. doi: 10.1111/nicc.13194. Epub 2024 Oct 28.
3
Factors that influence parents' and informal caregivers' views and practices regarding routine childhood vaccination: a qualitative evidence synthesis.影响父母和非正式照顾者对常规儿童疫苗接种看法和做法的因素:定性证据综合分析。
Cochrane Database Syst Rev. 2021 Oct 27;10(10):CD013265. doi: 10.1002/14651858.CD013265.pub2.
4
A systematic review of speech, language and communication interventions for children with Down syndrome from 0 to 6 years.对0至6岁唐氏综合征儿童言语、语言和沟通干预措施的系统评价。
Int J Lang Commun Disord. 2022 Mar;57(2):441-463. doi: 10.1111/1460-6984.12699. Epub 2022 Feb 22.
5
Children's experiences of living with a parent with mental illness: A systematic review of qualitative studies using thematic analysis.儿童与患有精神疾病的父母共同生活的经历:运用主题分析法对定性研究的系统综述
J Psychiatr Ment Health Nurs. 2018 Mar;25(2):131-141. doi: 10.1111/jpm.12415. Epub 2017 Aug 24.
6
Interventions for interpersonal communication about end of life care between health practitioners and affected people.干预健康从业者与受影响者之间关于临终关怀的人际沟通。
Cochrane Database Syst Rev. 2022 Jul 8;7(7):CD013116. doi: 10.1002/14651858.CD013116.pub2.
7
Experiences of health professionals towards using mobile electrocardiogram (ECG) technology: A qualitative systematic review.健康专业人员使用移动心电图 (ECG) 技术的体验:定性系统评价。
J Clin Nurs. 2023 Jul;32(13-14):3205-3218. doi: 10.1111/jocn.16434. Epub 2022 Jun 28.
8
Communication skills training for healthcare professionals working with people who have cancer.针对与癌症患者打交道的医疗保健专业人员的沟通技能培训。
Cochrane Database Syst Rev. 2018 Jul 24;7(7):CD003751. doi: 10.1002/14651858.CD003751.pub4.
9
A qualitative systematic review of the role of families in supporting communication in people with dementia.一项关于家庭在支持痴呆症患者沟通方面作用的定性系统评价。
Int J Lang Commun Disord. 2022 Sep;57(5):1130-1153. doi: 10.1111/1460-6984.12738. Epub 2022 Jun 17.
10
Interventions for promoting habitual exercise in people living with and beyond cancer.促进癌症患者及康复者进行习惯性锻炼的干预措施。
Cochrane Database Syst Rev. 2018 Sep 19;9(9):CD010192. doi: 10.1002/14651858.CD010192.pub3.

引用本文的文献

1
Grief, bereavement and prolonged grief disorder: scoping and mapping the evidence.悲伤、丧亲之痛与持续性悲伤障碍:证据的范围界定与梳理
BJPsych Open. 2025 Jul 11;11(4):e149. doi: 10.1192/bjo.2025.10050.
2
Family Involvement in Learning From Expected Child Deaths: A Qualitative Study of UK Parents.家庭参与从儿童预期死亡中学习:对英国父母的定性研究
Child Care Health Dev. 2025 Jul;51(4):e70134. doi: 10.1111/cch.70134.
3
Child death review: understanding variations in practice using normalisation process theory.儿童死亡审查:运用规范化过程理论理解实践中的差异

本文引用的文献

1
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories.当孩子去世时:对明确以父母为中心的丧亲干预措施及其与悲伤和损失理论的一致性的系统评价。
BMC Palliat Care. 2020 Mar 12;19(1):28. doi: 10.1186/s12904-020-0529-z.
2
Regret and unfinished business in parents bereaved by cancer: A mixed methods study.癌症丧亲父母的遗憾和未竟之事:一项混合方法研究。
Palliat Med. 2020 Mar;34(3):367-377. doi: 10.1177/0269216319900301. Epub 2020 Feb 5.
3
The mother's risk of premature death after child loss across two centuries.
BMJ Paediatr Open. 2025 May 27;9(1):e003432. doi: 10.1136/bmjpo-2025-003432.
4
Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement.新生儿死亡的背景会影响父母对临终关怀的看法、丧失亲人后的第一年的焦虑和抑郁。
BMC Palliat Care. 2023 May 13;22(1):58. doi: 10.1186/s12904-023-01183-8.
5
Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis.理解家长对儿童临终关怀的体验:系统评价和定性证据综合。
Palliat Med. 2023 Feb;37(2):178-202. doi: 10.1177/02692163221144084. Epub 2022 Dec 22.
两个世纪以来,母亲因子女夭折而早逝的风险。
Elife. 2019 Nov 12;8:e43476. doi: 10.7554/eLife.43476.
4
Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study.丧亲父母悲痛延长与心理健康:1 至 5 年丧子后-全国性研究
Psychooncology. 2019 Jul;28(7):1530-1536. doi: 10.1002/pon.5112. Epub 2019 Jun 10.
5
Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn.新生儿死亡后为父母提供哀伤护理中记忆构建的范围综述
J Obstet Gynecol Neonatal Nurs. 2019 May;48(3):351-360. doi: 10.1016/j.jogn.2019.02.001. Epub 2019 Apr 1.
6
Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review.缩短生命条件下儿童的善终认知:综合评价。
J Palliat Med. 2019 Jun;22(6):714-723. doi: 10.1089/jpm.2018.0335. Epub 2018 Dec 11.
7
Introducing PALETTE: an iterative method for conducting a literature search for a review in palliative care.介绍 PALETTE 方法:一种用于进行姑息治疗综述文献检索的迭代方法。
BMC Palliat Care. 2018 Jun 2;17(1):82. doi: 10.1186/s12904-018-0335-z.
8
Disturbed grief: prolonged grief disorder and persistent complex bereavement disorder.紊乱性悲伤:延长哀伤障碍和持续性复杂丧亲之痛障碍
BMJ. 2017 May 18;357:j2016. doi: 10.1136/bmj.j2016.
9
A Provider-Based Survey To Assess Bereavement Care Knowledge, Attitudes, and Practices in Pediatric Oncologists.一项基于提供者的调查,旨在评估儿科肿瘤学家对丧亲之痛护理的知识、态度和实践。
J Palliat Med. 2017 Mar;20(3):266-272. doi: 10.1089/jpm.2015.0430. Epub 2017 Jan 10.
10
Parents' experience of a follow-up meeting after a child's death in the Paediatric Intensive Care Unit.父母在儿科重症监护病房孩子死亡后参加随访会议的经历。
Intensive Crit Care Nurs. 2017 Feb;38:31-39. doi: 10.1016/j.iccn.2016.06.006. Epub 2016 Aug 12.