Bamford Centre for Mental Health and Wellbeing, Ulster University, Coleraine, UK
Bamford Centre for Mental Health and Wellbeing, Ulster University, Coleraine, UK.
BMJ Open. 2022 Jan 19;12(1):e055777. doi: 10.1136/bmjopen-2021-055777.
To identify validated dermatology-specific and disease-specific psychosocial needs assessment tools for caregivers of paediatric patients with dermatological conditions. A secondary objective was to assess the adequacy of their measurement properties.
Systematic review.
EMBASE, PsycINFO, MEDLINE (in Ovid SP), Cochrane, Cumulative Index to Nursing and Allied Health EBSCO, U Search and Web of Science were searched (2000-5 October 2021). Grey literature, bibliographies, online databases of QoL tools and several trial registers were searched (2000-5 Oct 2021).
Eligible studies involved adult caregivers caring for a child (no age limit) with any form of any skin condition. Predetermined exclusion criteria, as per protocol, were applied to the search results.
Title, abstract, full-text screening and data abstraction (standardised forms) were done independently in duplicate. Both's predefined methodological criteria assessed risk of bias. Narrative synthesis was used to present the findings.
187 full-text articles were examined from a total of 8979 records. Most tools were generic QoL tools, relevant to spouse/partner or based on their child's perception of the disease or assessed patients' quality of life. Following quality appraisal, 26 articles were identified, and 11 tools (1 dermatology-specific and 10 disease-specific) were included. Information outcome domains were provided for each tool (study specific, questionnaire specific, adequacy of measurement properties and risk of bias). No literature was found pertaining to the use of these tools within healthcare settings and/or as e-tools.
With limited evidence supporting the quality of their methodological and measurement properties, this review will inform future dermatological Core Outcome Set development and improve evidence-based clinical decisions. Increasing demand on limited healthcare resources justifies the codevelopment of an accessible solution-focused psychosocial needs assessment e-tool to promote caregiver health outcomes.
PROSPERO (CRD42019159956).
确定经过验证的皮肤科特定和疾病特定的心理社会需求评估工具，用于评估照顾患有皮肤病儿童的成年人。次要目的是评估其测量特性的充分性。
系统评价。
EMBASE、PsycINFO、MEDLINE（在 Ovid SP 中）、Cochrane、Cumulative Index to Nursing and Allied Health EBSCO、U Search 和 Web of Science 于 2000 年至 2021 年 10 月 5 日进行检索。灰色文献、参考文献、在线 QoL 工具数据库和多个试验登记处也进行了检索（2000-2021 年 10 月 5 日）。
研究涉及照顾患有任何形式任何皮肤状况的儿童（无年龄限制）的成年照护者。根据协议，预先确定了排除标准，应用于搜索结果。
标题、摘要、全文筛选和数据提取（使用标准化表格）由两名独立人员完成。两者均根据预先确定的方法学标准评估偏倚风险。采用叙述性综合方法呈现研究结果。
从总共 8979 条记录中检查了 187 篇全文文章。大多数工具都是通用的 QoL 工具，与配偶/伴侣相关，或基于其孩子对疾病的感知，或评估患者的生活质量。经过质量评估，确定了 26 篇文章，纳入了 11 种工具（1 种皮肤科专用工具和 10 种疾病专用工具）。为每种工具提供了信息结果领域（研究特定、问卷特定、测量特性的充分性和偏倚风险）。未发现有关这些工具在医疗保健环境中使用的文献，也未发现将其用作电子工具的文献。
由于支持其方法学和测量特性质量的证据有限，本综述将为未来的皮肤科核心结局集开发提供信息，并改善基于证据的临床决策。对有限医疗资源的需求不断增加，证明了开发一种可访问的以解决方案为重点的心理社会需求评估电子工具是合理的，以促进照护者的健康结果。
PROSPERO（CRD42019159956）。
