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社交媒体社区在脑卒中康复中用于护理人员信息支持的利用:内容和互动分析。

Utilization of social media communities for caregiver information support in stroke recovery: An analysis of content and interactions.

机构信息

School of Information Technology, Deakin University, Geelong, VIC, Australia.

Department of Public Health, University of Copenhagen, Copenhagen, Denmark.

出版信息

PLoS One. 2022 Jan 26;17(1):e0262919. doi: 10.1371/journal.pone.0262919. eCollection 2022.


DOI:10.1371/journal.pone.0262919
PMID:35081150
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8791510/
Abstract

BACKGROUND: Caregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care. METHOD: Social media communities used by caregivers of people affected by stroke were identified using popular keywords searched for using Google. Communities were filtered based on their ability to provide support to caregivers. Data from the included communities were extracted and analysed to determine the content and level of interaction. RESULTS: There was a significant rise in the use of social media by caregivers of people affected by stroke. The most popular social media communities were charitable and governmental organizations with the highest user interaction-this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources. CONCLUSION: Findings show the ability of social media to support stroke caregiver needs and practices that should be considered to increase their interaction and support.

摘要

背景:照顾者经常使用互联网获取与中风护理相关的信息,以提高准备程度,从而减少不确定性并提高护理质量。

方法:使用谷歌搜索热门关键词,确定受中风影响人群的照顾者所使用的社交媒体社区。根据为照顾者提供支持的能力对社区进行筛选。从纳入的社区中提取和分析数据,以确定内容和互动水平。

结果:受中风影响人群的照顾者对社交媒体的使用呈显著上升趋势。最受欢迎的社交媒体社区是慈善和政府组织,用户互动度最高——这是针对通过基于视频的资源提供的中风预防、症状和照顾者自我护理相关主题。

结论:研究结果表明,社交媒体有能力满足中风照顾者的需求和实践,应考虑增加他们的互动和支持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/0acaeb9b7cff/pone.0262919.g008.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/6f175657067f/pone.0262919.g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/3533ff5f7198/pone.0262919.g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/ab249771c48e/pone.0262919.g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/e7eb416ea04d/pone.0262919.g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/d9e8fdf19c8a/pone.0262919.g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/8dcc0beae76f/pone.0262919.g006.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/472c4ff96034/pone.0262919.g007.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/0acaeb9b7cff/pone.0262919.g008.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/6f175657067f/pone.0262919.g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/3533ff5f7198/pone.0262919.g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/ab249771c48e/pone.0262919.g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/e7eb416ea04d/pone.0262919.g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/d9e8fdf19c8a/pone.0262919.g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/8dcc0beae76f/pone.0262919.g006.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/472c4ff96034/pone.0262919.g007.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d3a1/8791510/0acaeb9b7cff/pone.0262919.g008.jpg

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[7]
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J Neurol. 2023-8

[8]
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本文引用的文献

[1]
Understanding the Methodological Issues and Solutions in the Research Design of Stroke Caregiving Technology.

Front Public Health. 2021

[2]
Internet Access and Usage Among Stroke Survivors and Their Informal Caregivers: Cross-sectional Study.

JMIR Form Res. 2021-3-8

[3]
Misinformation of COVID-19 on the Internet: Infodemiology Study.

JMIR Public Health Surveill. 2020-4-9

[4]
Public Health and Online Misinformation: Challenges and Recommendations.

Annu Rev Public Health. 2020-4-2

[5]
The effect of family-centered empowerment program on the family caregiver burden and the activities of daily living of Iranian patients with stroke: a randomized controlled trial study.

Aging Clin Exp Res. 2019-8-31

[6]
Key informants' perspectives on implementing caregiver programs in an organized system of stroke care.

Disabil Rehabil. 2021-4

[7]
An Evaluation of the Family Informal Caregiver Stroke Self-Management Program.

Can J Neurol Sci. 2018-11

[8]
Preventing Chronic Emotional Distress in Stroke Survivors and Their Informal Caregivers.

Neurocrit Care. 2019-6

[9]
Pictures in health information and their pitfalls: Focus group study and systematic review.

Z Evid Fortbild Qual Gesundhwes. 2018-11

[10]
HARNESSING SOCIAL MEDIA FOR HEALTH INFORMATION MANAGEMENT.

Electron Commer Res Appl. 2018

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