University of Queensland Centre for Clinical Research, Faculty of Medicine, The University of Queensland, Herston, QLD, Australia.
School of Psychology, The University of Queensland, St Lucia, QLD, Australia.
Int Psychogeriatr. 2022 Jul;34(7):637-644. doi: 10.1017/S1041610221002866. Epub 2022 Feb 7.
Informal carers play an essential role in the care of individuals with Parkinson's disease (PD). This role, however, is often fraught with difficulties, including emotional, physical, and financial. Coping styles and relationship quality have been hypothesized to influence the impact of stressors. The aim of this study is to examine the relationship between carers' coping style, relationship quality, and carer burden.
Cross-sectional.
Thirty-nine PD patient carer dyads were included in the study.
Participants completed self-rated questionnaires including the Dyadic Adjustment Scale, Zarit Burden Interview, and Brief Coping Orientation to Problems Experienced Inventory.
Correlational analyses found significant and positive correlation between carer burden and all three coping styles (problem-focused, emotion-focused, and dysfunctional). There was also a moderate association between carers' perceived relationship quality and satisfaction and carer burden. Regression analyses found that carer's gender, severity of PD, relationship quality, emotion-focused, and dysfunctional coping styles did not predict carer burden. Conversely, problem-focused coping style predicted carer burden.
The results highlight that there is no perfect way to react and care for a loved one and serves as important information for practitioners who design and implement interventions.
在帕金森病（PD）患者的护理中，非正式护理者发挥着至关重要的作用。然而，这一角色常常充满困难，包括情感、身体和经济方面的困难。应对方式和关系质量被假设会影响压力源的影响。本研究旨在探讨护理者的应对方式、关系质量和护理者负担之间的关系。
横断面研究。
研究纳入了 39 对 PD 患者护理者。
参与者完成了自我评估问卷，包括夫妻适应量表、Zarit 负担访谈和简明应对方式问卷。
相关性分析发现，护理者负担与三种应对方式（问题聚焦、情绪聚焦和功能失调）均呈显著正相关。护理者感知的关系质量和满意度与护理者负担也存在中度关联。回归分析发现，护理者的性别、PD 的严重程度、关系质量、情绪聚焦和功能失调的应对方式并不能预测护理者负担。相反，问题聚焦的应对方式预测了护理者负担。
研究结果强调，没有一种完美的方式来照顾亲人，这为设计和实施干预措施的从业者提供了重要信息。
