Rajanala Susruthi, Wilson Jennifer K, Mitchell Paul D, Garvey Katharine C, Fishman Laurie N
Division of Gastroenterology, Boston Children's Hospital, Harvard Medical School, Harvard University, Boston, MA, United States.
Institutional Centers for Clinical and Translational Research, Boston Children's Hospital, Harvard University, Boston, MA, United States.
JMIR Pediatr Parent. 2022 Apr 25;5(2):e34466. doi: 10.2196/34466.
Social media is used by young adult patients for social connection and self-identification.
This study aims to compare the social media habits of young adults with inflammatory bowel disease (IBD) and type 1 diabetes (T1D).
This is a cross-sectional study of subjects from Boston Children's Hospital outpatient IBD and diabetes clinics. Patients above 18 years of age were invited to complete a brief anonymous survey, which asked about the various ways they use several social media platforms.
Responses were received from 108 patients (92.5% response rate), evenly split across disease type. We found that 83% of participants spent at least 30 minutes per day on social media, most commonly on Instagram and Facebook. Although the content varied based on the platform, patients with IBD posted or shared content related to their disease significantly less than those with T1D (23% vs 38%, P=.02). Among Instagram users, patients with IBD were less likely to engage with support groups (22% vs 56%, P=.04). Among Twitter users, patients with IBD were less likely to seek disease information (77% vs 29%, P=.005). Among Facebook users, patients with IBD were less likely to post about research and clinical trials (31% vs 65%, P=.04) or for information seeking (49% vs 87%, P=.003). Patients with IBD were also less likely to share their diagnosis with friends or family in person.
Young adults with IBD were less willing to share their diagnosis and post about or explore the disease on social media compared to those with T1D. This could lead to a sense of isolation and should be further explored.
社交媒体被年轻成年患者用于社交联系和自我认同。
本研究旨在比较患有炎症性肠病（IBD）和1型糖尿病（T1D）的年轻成年人的社交媒体使用习惯。
这是一项对来自波士顿儿童医院门诊IBD和糖尿病诊所的受试者进行的横断面研究。邀请18岁以上的患者完成一份简短的匿名调查问卷，该问卷询问了他们使用多个社交媒体平台的各种方式。
共收到108名患者的回复（回复率为92.5%），按疾病类型平均分配。我们发现83%的参与者每天至少花30分钟在社交媒体上，最常使用的是照片墙（Instagram）和脸书（Facebook）。尽管不同平台上的内容有所不同，但IBD患者发布或分享与疾病相关内容的比例明显低于T1D患者（23%对38%，P = 0.02）。在照片墙用户中，IBD患者参与支持小组的可能性较小（22%对56%，P = 0.04）。在推特用户中，IBD患者寻求疾病信息的可能性较小（77%对29%，P = 0.005）。在脸书用户中，IBD患者发布有关研究和临床试验内容的可能性较小（31%对65%，P = 0.04）或寻求信息的可能性较小（49%对87%，P = 0.003）。IBD患者也不太可能亲自与朋友或家人分享他们的诊断结果。
与T1D患者相比，患有IBD的年轻成年人不太愿意在社交媒体上分享他们的诊断结果、发布或探讨疾病相关内容。这可能导致一种孤立感，值得进一步研究。
