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参与式家庭工作坊在心理社会健康和疾病研究中的应用:来自丹麦健康促进项目的经验。

Participatory family workshops in psychosocial health and illness research: experiences from Danish health promotion projects.

机构信息

Steno Diabetes Center Copenhagen, Health Promotion Research, Borgmester Ib Juuls Vej 83, 2730 Herlev, Denmark.

出版信息

Health Promot Int. 2022 Jun 23;37(Supplement_2):ii73-ii82. doi: 10.1093/heapro/daac014.

DOI:10.1093/heapro/daac014
PMID:35190822
Abstract

Family involvement in health and illness research is a complex matter, often characterized by unclear structural relations and contrasting needs and expectations within the family. As the family is a setting in which health and illness behaviors are developed, maintained and potentially changed, gaining knowledge about family dynamics and how to approach familial health promotion is essential. But which methodological approaches are best suited to collecting data for generating such knowledge? We propose using participatory family workshops as a method to generate in-depth data on health-related psychosocial family dynamics, the goal is to improve the field of familial health promotion. We have used family workshops in a variety of settings among various target groups in different research and development projects. In the present article, we re-visit and discuss three research projects focusing on (i) families living with type 2 diabetes, (ii) family-based prevention of childhood obesity and (iii) families with a child with type 1 diabetes. We present experiences with all phases involved in planning and facilitating research workshops. Key points are discussed in relation to implications and perspectives for practice and research. Family workshops are complex and sometimes unpredictable. However, when family workshops are successful, they provide rich and dynamic in-depth data that cannot be produced using more traditional forms of data collection. The article provides an outline of experiences as well as hands-on recommendations for working with family workshops.

摘要

家庭参与健康和疾病研究是一个复杂的问题,通常具有不明确的结构关系以及家庭内部相互矛盾的需求和期望。由于家庭是健康和疾病行为形成、维持和潜在改变的环境,因此了解家庭动态以及如何促进家庭健康至关重要。但是,哪种方法最适合收集生成此类知识的数据呢?我们提出使用参与式家庭研讨会作为一种方法,以生成与健康相关的心理社会家庭动态的深入数据,目标是改善家庭健康促进领域。我们在不同的研究和发展项目中,在各种不同的目标群体中,在各种不同的环境中使用了家庭研讨会。在本文中,我们重新审视并讨论了三个研究项目,重点是(i)患有 2 型糖尿病的家庭,(ii)基于家庭的儿童肥胖预防,以及(iii)患有 1 型糖尿病的家庭。我们介绍了规划和促进研究研讨会各个阶段的经验。讨论了关键点,涉及对实践和研究的影响和观点。家庭研讨会是复杂的,有时甚至是不可预测的。但是,当家庭研讨会取得成功时,它们会提供丰富而动态的深入数据,而这些数据无法通过更传统的收集数据形式来获得。本文提供了与家庭研讨会合作的经验概述以及实用建议。

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