Melguizo-Garín Anabel, Martos-Méndez Mª José, Hombrados-Mendieta Isabel, Ruiz-Rodríguez Iván
Department of Social Psychology, University of Malaga, Málaga, Spain.
Front Psychol. 2022 Feb 7;13:728733. doi: 10.3389/fpsyg.2022.728733. eCollection 2022.
The present study aims at analysing how social support received and provided by parents of children, adolescents and young adults (AYA) diagnosed with cancer, as well as their sociodemographic and clinical variables, affect those parents' stress levels and life and family satisfaction.
A total of 112 parents of children and AYAs who had been diagnosed with cancer and who received treatment in Malaga participated in the study. In the study, participated all parents who voluntarily agreed to fulfil the questionnaire. The main inclusion criterion was that their child had cancer. Instruments used were Questionnaire on the Frequency of and Satisfaction with Social Support (QFSSS), Paediatric Inventory for Parents (PIP), Life Satisfaction Scale and Family Satisfaction Scale.
In the mean difference analyses, male parents showed 3.38 (SD = 0.56) in social support received and female parents showed = 3.08 (SD = 0.72). Conversely, in social support provided, female parents showed 3.22 and male parents showed = 3.55 ( = 0.020). Significant differences were also found in family satisfaction, where female parents ( = 3.64) feel more satisfied than male parents ( = 3.06; = 0.027). Parents of children aged between 0 and 14 years ( = 3.06) feel more stress than those parents of children aged 15-21 ( = 2.61; = 0.021). The correlation analysis shows that there is a negative and significant relation between stress levels experienced by parents when facing different situations related to the child's disease and both types of support, received = -0.411, < 0.001 and provided = -0.282, < 0.01. There is also a positive and significant relation between life satisfaction and social support received = 0.292, < 0.01, and social support provided = 0.409, < 0.001. There is a positive and significant relation between family satisfaction and social support received = 0.330, < 0.01, in the same way as with social support provided = 0.222, < 0.05. The regression analysis related to stress levels of parents indicates that social support received predicts levels of stress significantly < 0.001, with the variable of number of children being the one that showed to be significant < 0.05. Social support provided showed the most significant results = 0.001, meaning that social support provided increased life satisfaction. Social support received explains family satisfaction ( = 0.50), as it increases the family satisfaction of parents of children with cancer.
Analysing social support received and provided, as well as sociodemographic and clinical variables, allowed us to broaden the knowledge on the effect social support has on stress levels, life satisfaction and family satisfaction in parents of children and AYAs diagnosed with cancer. This may have relevant practical implications for the design of interventions that would improve parents' lives.
本研究旨在分析被诊断患有癌症的儿童、青少年和青年(AYA)的父母所获得和提供的社会支持,以及他们的社会人口统计学和临床变量如何影响这些父母的压力水平、生活和家庭满意度。
共有112名在马拉加被诊断患有癌症并接受治疗的儿童和AYA的父母参与了该研究。在研究中,所有自愿同意填写问卷的父母都参与了。主要纳入标准是他们的孩子患有癌症。使用的工具包括社会支持频率与满意度问卷(QFSSS)、父母儿科量表(PIP)、生活满意度量表和家庭满意度量表。
在均值差异分析中,父亲在获得的社会支持方面得分为3.38(标准差=0.56),母亲得分为3.08(标准差=0.72)。相反,在提供的社会支持方面,母亲得分为3.22,父亲得分为3.55(P=0.020)。在家庭满意度方面也发现了显著差异,母亲(得分=3.64)比父亲(得分=3.06;P=0.027)感觉更满意。0至14岁孩子的父母(得分=3.06)比15至21岁孩子的父母(得分=2.61;P=0.021)压力更大。相关分析表明,父母在面对与孩子疾病相关的不同情况时所经历的压力水平与两种支持(获得的支持,r=-0.411,P<0.001;提供的支持,r=-0.282,P<0.01)之间存在负向且显著的关系。生活满意度与获得的社会支持(r=0.292,P<0.01)和提供的社会支持(r=0.409,P<0.001)之间也存在正向且显著的关系。家庭满意度与获得的社会支持(r=0.330,P<0.01)以及提供的社会支持(r=0.222,P<0.05)之间存在正向且显著的关系。与父母压力水平相关的回归分析表明,获得的社会支持能显著预测压力水平(P<0.001),孩子数量这一变量也具有显著性(P<0.05)。提供的社会支持显示出最显著的结果(P=0.001),这意味着提供的社会支持能提高生活满意度。获得的社会支持解释了家庭满意度(r=0.50),因为它提高了癌症患儿父母的家庭满意度。
分析获得和提供的社会支持以及社会人口统计学和临床变量,使我们能够拓宽对社会支持对被诊断患有癌症的儿童和AYA的父母的压力水平、生活满意度和家庭满意度的影响的认识。这可能对设计改善父母生活的干预措施具有相关的实际意义。