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西澳大利亚农村和偏远地区癌症患者在珀斯接受治疗期间使用支持性住宿的体验。

Experiences of People with Cancer from Rural and Remote Areas of Western Australia Using Supported Accommodation in Perth While Undergoing Treatment.

机构信息

School of Allied Health, Curtin University, Bentley, Perth, WA 6102, Australia.

出版信息

Curr Oncol. 2022 Feb 16;29(2):1190-1200. doi: 10.3390/curroncol29020101.

Abstract

The aim of the study was to explore the lived experiences of people diagnosed with cancer from rural and remote areas of Western Australia, who utilise supported accommodation services whilst undergoing treatment in the capital city (Perth). Methods A qualitative phenomenological approach was used in this study. Ten participants were recruited using purposive sampling, who were aged between 35-65 years, were diagnosed with cancer within the previous three months and used accommodation services within the past 12 months. Semi-structured in-depth interviews were conducted with a duration of approximately 45-60 min via Zoom, FaceTime or phone call. Interview data was transcribed, thematically analysed and coded into relevant themes. Results: Three overarching themes were derived from the interviews-"It's harder to have cancer when you have to relocate for treatment," "The paradoxical experience of staying at the accommodation," and "Feeling grateful for the support offered'. Conclusions: People diagnosed with cancer who have to relocate during treatment require emotional, logistical, and social supports. Cancer accommodation services are essential in enabling individuals to continue engaging in meaningful occupations and maintain their quality of life. Our study highlights the need for cancer accommodation services to consider the complex needs of individuals completing treatment for cancer in locations away from their usual homes.

摘要

本研究旨在探讨在西澳大利亚农村和偏远地区被诊断患有癌症的人们的生活体验,这些人在首府珀斯(Perth)接受治疗时使用了有支持的住宿服务。方法:本研究采用定性现象学方法。通过目的性抽样,招募了 10 名年龄在 35-65 岁之间、在过去三个月内被诊断患有癌症并在过去 12 个月内使用过住宿服务的参与者。通过 Zoom、FaceTime 或电话进行了大约 45-60 分钟的半结构化深入访谈。对访谈数据进行了转录、主题分析和相关主题编码。结果:从访谈中得出了三个总体主题——“因治疗而搬迁时,癌症更难治疗”、“住宿的矛盾体验”和“对提供的支持感到感激”。结论:在治疗期间必须搬迁的癌症患者需要情感、后勤和社会支持。癌症住宿服务对于使个人能够继续从事有意义的职业并维持其生活质量至关重要。我们的研究强调了癌症住宿服务需要考虑到远离其惯常住所接受癌症治疗的个人的复杂需求。

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Out-of-pocket expenses experienced by rural Western Australians diagnosed with cancer.农村西澳大利亚癌症患者的自付费用。
Support Care Cancer. 2018 Oct;26(10):3543-3552. doi: 10.1007/s00520-018-4205-2. Epub 2018 Apr 27.

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