Friedrich Annie B, Eberl Jason T
Bioethics Research Center, Washington University School of Medicine, Saint Louis, MO 63110, USA.
Albert Gnaegi Center for Health Care Ethics, Saint Louis University, Saint Louis, MO 63104, USA.
Children (Basel). 2022 Feb 6;9(2):207. doi: 10.3390/children9020207.
In this paper, we discuss the foundational values informing the Catholic perspective on decision-making for critically ill newborns and infants, particularly focusing on the prudent use of medical technologies. Although the Church has consistently affirmed the general good of advances in scientific research and medicine, the technocratic paradigm of medicine may, particularly in cases with severely ill infants, lead to decision-making conflicts and breakdowns in communication between parents and providers. By exploring two paradigm cases, we offer specific practices in which providers can engage to connect with parents and avoid common technologically mediated decision-making conflicts. By focusing on the inherent relationality of all human persons, regardless of debility, and the Christian hope in the life to come, we can make decisions in the midst of the technocratic paradigm without succumbing to it.
在本文中,我们探讨了构成天主教对危重新生儿和婴儿决策观点基础的价值观,尤其着重于医疗技术的审慎使用。尽管教会一直肯定科学研究和医学进步的总体益处,但医学的技术官僚范式可能,特别是在患有重病婴儿的案例中,导致决策冲突以及父母与医疗服务提供者之间的沟通破裂。通过探究两个范例案例,我们提供了一些具体做法,医疗服务提供者可以借此与父母建立联系,并避免常见的由技术介导的决策冲突。通过关注所有人内在的关联性,无论其是否虚弱,以及对来世的基督教希望,我们能够在技术官僚范式中做出决策而不屈从于它。