Verkerk Eva W, Rake Ester A, Braat Didi D M, Nelen Willianne L D M, Aarts Johanna W M, Kremer Jan A M
Department of IQ Healthcare, Radboud University Medical Center, Radboud Institute for Health Sciences, Nijmegen, The Netherlands.
Knowledge Institute of Medical Specialists, Utrecht, The Netherlands.
Health Expect. 2022 Jun;25(3):1081-1093. doi: 10.1111/hex.13455. Epub 2022 Feb 26.
An important-and often missing-element of person-centred care is the inclusion of individual patients' values and preferences. This is challenging but especially important for high-burden fertility treatments. We describe the development of a clinical tool that aims to facilitate the delivery of person-centred fertility care by giving insight into the patients' values and preferences.
We developed the Tell me tool following the three principles of user-centred design: (1) early and continual focus on users; (2) iterative design; (3) measurement of user behaviour. Accordingly, our methods consisted of three phases: (1) conducting semi-structured interviews with 18 couples undergoing fertility treatment, followed by a consensus meeting with relevant stakeholders; (2) performing seven iterative improvement rounds; (3) testing the feasibility of the tool in 10 couples.
The Tell me tool consists of a ranking assignment of 13 themes and two open-ended questions. These themes relate to the couples' wellbeing and experience of the treatment, such as mental health and shared decision making. The open-ended questions ask them to write down what matters most to them. The field test showed variation between the individual patients' answers. The tool proved to highlight what is important to the individual patient and gives insight into patients' personal contexts.
We developed a tool that gives insight into the values and preferences of the individual patient. The tool seems feasible for facilitating person-centred fertility care.
The tool was developed with a user-centred design that strongly involved patients.
以患者为中心的护理中一个重要且常常缺失的要素是纳入个体患者的价值观和偏好。这具有挑战性，但对于高负担的生育治疗尤为重要。我们描述了一种临床工具的开发，该工具旨在通过深入了解患者的价值观和偏好来促进以患者为中心的生育护理。
我们按照以用户为中心的设计的三个原则开发了“告诉我”工具：（1）早期并持续关注用户；（2）迭代设计；（3）测量用户行为。相应地，我们的方法包括三个阶段：（1）对18对接受生育治疗的夫妇进行半结构化访谈，随后与相关利益相关者召开共识会议；（2）进行七轮迭代改进；（3）在10对夫妇中测试该工具的可行性。
“告诉我”工具包括对13个主题的排名任务和两个开放式问题。这些主题涉及夫妇的幸福感和治疗体验，如心理健康和共同决策。开放式问题要求他们写下对自己最重要的事情。现场测试显示个体患者的答案存在差异。该工具被证明能够突出对个体患者重要的事情，并深入了解患者的个人背景。
我们开发了一种能够深入了解个体患者价值观和偏好的工具。该工具似乎对于促进以患者为中心的生育护理是可行的。
该工具是以强烈涉及患者的以用户为中心的设计开发的。
