Albers Elaine A C, Fraterman Itske, Walraven Iris, Wilthagen Erica, Schagen Sanne B, van der Ploeg Iris M, Wouters Michel W J M, van de Poll-Franse Lonneke V, de Ligt Kelly M
Department of Psychosocial Research, Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.
Department for Health Evidence, Radboudumc, Nijmegen, The Netherlands.
J Patient Rep Outcomes. 2022 Mar 3;6(1):18. doi: 10.1186/s41687-022-00424-3.
The use of Patient-Reported Outcome Measures (PROMs) for individual patient management within clinical practice is becoming increasingly important. New evidence about graphic visualization formats for PROMs scores has become available. This systematic literature review evaluated evidence for graphic visualization formats of PROMs data in clinical practice for patients and clinicians, for both individual and group level PROMs data.
Studies published between 2000 and 2020 were extracted from CINAHL, PubMed, PsychInfo, and Medline. Studies included patients ≥ 18 years old in daily clinical practice. Papers not available in English, without full-text access, or that did not specifically describe visualization of PROMs data were excluded. Outcomes were: visualization preferences; interpretation accuracy; guidance for clinical interpretation.
Twenty-five out of 789 papers were included for final analysis. Most frequently studied formats were: bar charts, line graphs, and pie charts. Patients preferred bar charts and line graphs as these were easy and quick for retrieving information about their PROMs scores over time. Clinicians' interpretation accuracy and preferences were similar among graphic visualization formats. Scores were most often compared with patients' own previous scores; to further guide clinical interpretation, scores were compared to norm population scores. Different 'add-ons' improved interpretability for patients and clinicians, e.g. using colors, descriptions of measurement scale directionality, descriptive labels, and brief definitions.
There was no predominant graphical visualization format approach in terms of preferences or interpretation accuracy for both patients and clinicians. Detailed clarification of graph content is essential.
在临床实践中使用患者报告结局测量(PROMs)进行个体患者管理变得越来越重要。关于PROMs评分的图形可视化格式的新证据已经出现。本系统文献综述评估了临床实践中针对患者和临床医生的PROMs数据图形可视化格式的证据,包括个体和群体层面的PROMs数据。
从CINAHL、PubMed、PsychInfo和Medline中提取2000年至2020年发表的研究。研究纳入日常临床实践中年龄≥18岁的患者。排除非英文、无法获取全文或未具体描述PROMs数据可视化的论文。结局指标包括:可视化偏好;解释准确性;临床解释指导。
789篇论文中有25篇被纳入最终分析。研究最频繁的格式是:柱状图、折线图和饼图。患者更喜欢柱状图和折线图,因为这些图便于快速获取其PROMs随时间变化的分数信息。在图形可视化格式中,临床医生的解释准确性和偏好相似。分数最常与患者自身之前的分数进行比较;为进一步指导临床解释,分数还与正常人群分数进行比较。不同的“附加内容”提高了患者和临床医生的可解释性,例如使用颜色、测量尺度方向性描述、描述性标签和简要定义。
在患者和临床医生的偏好或解释准确性方面,没有占主导地位的图形可视化格式方法。对图形内容进行详细说明至关重要。