Australian Research Centre for Population Oral Health, Adelaide Dental School, The University of Adelaide, Adelaide, Australia.
Department of Paediatric Dentistry, Women's and Children's Hospital, North Adelaide, Australia.
Cleft Palate Craniofac J. 2023 Jul;60(7):888-899. doi: 10.1177/10556656221084542. Epub 2022 Mar 7.
Children and adolescents with orofacial clefts may experience ongoing psychosocial impacts due to the continuous nature of cleft treatments, facial and dental differences, and speech and hearing difficulties. The aim of this qualitative systematic review was to better understand the experiences of children and adolescents with orofacial clefts.
A systematic search strategy using PubMed, Embase, Emcare, Scopus, and Web of Science databases was performed to identify relevant qualitative studies evaluating the lived experience of children and adolescents with orofacial clefts from inception through to June 2021. Eligible studies were critically appraised using the Joanna Briggs methodology and a meta-aggregative approach.
The search identified 2466 studies, with 13 found to meet the inclusion criteria. Extraction of 155 findings resulted in 27 categories, which were meta-aggregated into 7 overarching synthesized findings. These 7 core findings included aspects of child experience and findings that enhanced or impeded child experience at the individual, family, and community levels.
Factors that impeded child experience at the individual, family, and community levels were more pronounced than factors that enhanced their experience among children and adolescents with orofacial clefts. Further initiatives are needed to provide support to individuals, families, and school communities to enhance children's experience of orofacial cleft during the formative childhood and adolescent years.
由于唇腭裂治疗的持续性质、面部和牙齿差异以及言语和听力困难，儿童和青少年可能会持续经历心理社会影响。本定性系统综述的目的是更好地了解唇腭裂儿童和青少年的体验。
使用 PubMed、Embase、Emcare、Scopus 和 Web of Science 数据库进行系统搜索策略，以确定从开始到 2021 年 6 月评估唇腭裂儿童和青少年生活体验的相关定性研究。使用 Joanna Briggs 方法和元聚合方法对合格研究进行批判性评估。
搜索确定了 2466 项研究，其中 13 项符合纳入标准。提取 155 项发现结果，得出 27 个类别，这些类别被元聚合为 7 个总体综合发现。这 7 个核心发现包括儿童体验的各个方面以及增强或阻碍个体、家庭和社区层面儿童体验的发现。
与增强唇腭裂儿童和青少年体验的因素相比，在个体、家庭和社区层面阻碍儿童体验的因素更为明显。需要进一步采取措施，为个人、家庭和学校社区提供支持，以增强儿童在儿童和青少年时期对唇腭裂的体验。
