口腔颌面裂的青少年：理解他们的经历。
Adolescents with orofacial clefts: understanding their experiences.
机构信息
Universidade de São Paulo, Bauru, SP, Brazil.
出版信息
Rev Paul Pediatr. 2024 May 6;42:e2023131. doi: 10.1590/1984-0462/2024/42/2023131. eCollection 2024.
OBJECTIVE
To understand the experience of young people with orofacial clefts regarding life as an adolescent.
METHODS
Descriptive, qualitative study, developed in a Brazilian public and tertiary hospital, a reference center in the care of patients with craniofacial anomalies and related syndromes, between February and April 2019. The sample was defined by theoretical saturation. The following inclusion criteria were established: age between ten and 19 years old and having previously operated on orofacial cleft (lip and/or palate). Individuals with fissure associated with syndromes or other malformations were excluded. Data collection was performed through semi-structured interviews, which were audio recorded and transcribed in full. The trigger element was: how has it been for you to experience your adolescence? For the construction of the results, content analysis was used in the thematic modality.
RESULTS
Seventeen adolescents participated. From the speeches, three categories were revealed: interacting socially, feeling supported, and experiencing and facing prejudice.
CONCLUSIONS
The biopsychosocial and conflicting complexity that adolescents with orofacial clefts experience was noticed, as well as the importance of receiving support and establishing modalities of situational coping.
目的
了解唇腭裂青少年的生活体验。
方法
描述性定性研究，于 2019 年 2 月至 4 月在巴西一家公立医院和三级医院进行，该医院是颅面畸形和相关综合征患者护理的参考中心。样本由理论饱和度确定。纳入标准为：10 至 19 岁，曾接受过唇腭裂（唇裂和/或腭裂）手术。排除伴有综合征或其他畸形的裂隙。通过半结构化访谈收集数据，访谈内容进行了完整的录音和转录。触发元素是：你在青春期经历了什么？为了构建结果，使用了主题模式的内容分析。
结果
17 名青少年参与。从演讲中，揭示了三个类别：社交互动、获得支持以及经历和面对偏见。
结论
注意到唇腭裂青少年经历的生物心理社会和冲突的复杂性，以及获得支持和建立情境应对方式的重要性。
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