Bertelli Sara, Ferrara Paolo, Di Modica Sharon, Bergamelli Emilio, Gambini Orsola, D'Agostino Armando, Destrebecq Anne, Terzoni Stefano
Department of Mental Health and Addiction, ASST Santi Paolo e Carlo, San Paolo Hospital, Milan, Italy.
Bachelor School of Nursing, ASST Santi Paolo e Carlo, San Paolo Hospital, Milan, Italy.
J Eat Disord. 2022 Mar 7;10(1):34. doi: 10.1186/s40337-022-00560-7.
Living with people diagnosed with a mental disorder is known to increase the risk of developing high levels of so-called "caregiver burden" in informal caregivers. In-depth analysis of this phenomenon and specific assessment tools for caregivers of patients diagnosed with Eating Disorders (EDs) are lacking. In this study, we aimed to evaluate the psychometric properties of the Caregiver Burden Inventory in EDs and employ this adapted tool in this category of caregivers.
A cross-sectional study was conducted in the Eating Disorders outpatient unit of an Italian University hospital. Face and content validity were investigated by calculating standard Content Validity Indices (CVI-I and CVI-S) after administering the Inventory to 6 expert nurses with at least 5 years of experience in mental health services assisting people diagnosed with Eating Disorders. Internal consistency was evaluated with Cronbach's α coefficient for the overall scale and subscales. An exploratory factor analysis (EFA) was performed to explore latent constructs. The adapted CBI was then administered to 62 informal caregivers of ED patients.
The EFA yielded a 5-factor structure. The CVI-S was 97.2%; the Cronbach α coefficient was 0,90 (> 0.74 in each subscale). The median burden level in the experimental population was 40.0 [range = 21 to 54], in a theoretical range from 0 (no burden) to 96 (highest level of burden).
The Caregiver Burden Inventory appears to be a valid and reliable instrument to assess caregiver burden in individuals diagnosed with Eating Disorders. Further research is needed to evaluate this tool's efficiency in improving individually tailored interventions on families.
众所周知，与被诊断患有精神障碍的人生活在一起会增加非正式照料者出现高水平所谓“照料者负担”的风险。目前缺乏对这一现象的深入分析以及针对被诊断患有饮食失调症（EDs）患者的照料者的具体评估工具。在本研究中，我们旨在评估饮食失调症照料者负担量表的心理测量特性，并将这一经过改编的工具应用于这类照料者。
在一家意大利大学医院的饮食失调门诊进行了一项横断面研究。在向6名具有至少5年协助被诊断患有饮食失调症患者的心理健康服务经验的专家护士发放该量表后，通过计算标准内容效度指数（CVI-I和CVI-S）来调查表面效度和内容效度。用Cronbach's α系数评估总量表和子量表的内部一致性。进行探索性因素分析（EFA）以探索潜在结构。然后将改编后的照料者负担量表（CBI）应用于62名饮食失调症患者的非正式照料者。
探索性因素分析得出一个五因素结构。CVI-S为97.2%；Cronbach α系数为0.90（每个子量表均>0.74）。实验人群的照料者负担水平中位数为40.0[范围=21至54]，理论范围为0（无负担）至96（最高负担水平）。
照料者负担量表似乎是评估被诊断患有饮食失调症个体的照料者负担的有效且可靠工具。需要进一步研究来评估该工具在改善针对家庭的个性化干预措施方面的效果。
