癌症护理的隐性经济负担。

The hidden economic burden of cancer caring.

作者信息

Gao Lan, Bohingamu Mudiyanselage Shalika, Ugalde Anna, Watts Jennifer J, Jongebloed Hannah, Thomas Sangeetha, Das Neha, Lyall Andrew, Winter Natalie, Cowdery Stephanie, McCaffrey Nikki, White Victoria, Livingston Patricia M

机构信息

Deakin Health Economics, School of Health and Social Development, Institute for Health Transformation, Deakin University, Geelong, Victoria, Australia.

Centre for Quality and Patient Safety Research, Institute for Health Transformation, School of Nursing and Midwifery, Deakin University, Geelong, Victoria, Australia.

出版信息

Cancer. 2025 Jul 15;131(14):e35970. doi: 10.1002/cncr.35970.

DOI:10.1002/cncr.35970

PMID:40631980

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12239854/

Abstract

BACKGROUND

Advances in clinical cancer care have increased the number of survivors, which has impacted informal caregiving. This study estimates the annual opportunity cost of informal cancer care and quantifies the gap in the quality adjusted life expectancy (QALE).

METHOD

Informal cancer carers by sex and two age groups (15-64 years old and 65 years old and over) from the Australian Bureau of Statistics (ABS), Survey of Disability, Ageing and Carers (SDAC) from 2003 to 2022 were used to estimate the annual opportunity costs of informal cancer care in 2022 and predict future costs. Costs were based on an hourly wage rate, and the QALE were calculated by combining health-related quality of life (HRQOL) with life expectancy.

RESULTS

In 2022, there were 59,100 informal cancer carers (61% female, 61% were above 65 years). The average time for informal cancer care was 28.6 hours per week. The average informal care cost was $60,853 per carer, and the cost is estimated to rise by 11% in 2025 and 30% in 2028. The QALE loss ranges from 1.8 to 5.4 months per year of caring, depending on age group and sex.

CONCLUSION

The time spent caring for people living with cancer by informal carers is significant. Recognizing and rigorously investigating the role of informal cancer carers in reducing the burden on the formal care sector and improving the quality of life of people living with cancer is essential to understanding the impact and significance of caring, which will facilitate impactful policy changes.

摘要

背景

临床癌症护理的进步增加了幸存者的数量，这对非正式护理产生了影响。本研究估计了非正式癌症护理的年度机会成本，并量化了质量调整生命预期（QALE）的差距。

方法

使用澳大利亚统计局（ABS）2003年至2022年残疾、老龄化和护理调查（SDAC）中按性别和两个年龄组（15 - 64岁以及65岁及以上）划分的非正式癌症护理人员，来估计2022年非正式癌症护理的年度机会成本并预测未来成本。成本基于小时工资率，QALE通过将健康相关生活质量（HRQOL）与预期寿命相结合来计算。

结果

2022年，有59,100名非正式癌症护理人员（61%为女性，61%年龄在65岁以上）。非正式癌症护理的平均时间为每周28.6小时。每位护理人员的平均非正式护理成本为60,853美元，预计成本在2025年将上升11%，在2028年将上升30%。根据年龄组和性别，每年护理导致的QALE损失在1.8至5.4个月之间。