The University of Texas Health Science Center at Houston, Cizik School of Nursing, 6901 Bertner Ave., Houston, Texas 77030, United States of America.
The University of Texas Health Science Center at Houston, Cizik School of Nursing, 6901 Bertner Ave., Houston, Texas 77030, United States of America.
J Pediatr Nurs. 2022 May-Jun;64:111-118. doi: 10.1016/j.pedn.2022.02.008. Epub 2022 Mar 11.
The impact on children who visit an ill sibling in the pediatric intensive care unit (PICU) is unknown. The aim of this study was to describe the experiences of siblings of acutely critically ill or injured children hospitalized in the PICU.
A qualitative approach using one-to-one interviews was conducted to gain an understanding of the experience of 9- to 17-year-old children who visited their siblings in the PICU. Thematic analysis was used to develop a description of the experiences of the siblings.
Sixteen siblings (mean age, 12.5 years) indicated that visiting their critically ill sister or brother in the PICU can cause negative reactions. The data revealed two major themes within the overall sibling experience-stressors, coping-and nine subthemes. Predominant sibling stressors included pre-illness stressors, the PICU environment, the appearance of the ill child, uncertainty, and parental stress. Siblings coped mainly via distractions, social support, and spirituality and by reflecting on the sibling relationship. Support from friends, family members, and the community was reported to be helpful.
Siblings visiting the PICU may experience a broad range of physical, emotional, and social responses.
Future research should fully incorporate the sibling perspective when designing interventions to mitigate the potentially distressing effects of PICU visitation on the family.
目前尚不清楚儿科重症监护病房(PICU)中探访患病兄弟姐妹的儿童会受到怎样的影响。本研究旨在描述在 PICU 住院的急性重病或受伤儿童的兄弟姐妹的经历。
采用一对一访谈的定性方法,以了解 9 至 17 岁探访 PICU 中患病兄弟姐妹的儿童的经历。使用主题分析来描述兄弟姐妹的经历。
16 名兄弟姐妹(平均年龄 12.5 岁)表示,在 PICU 探访病重或受伤的兄弟姐妹会引起负面反应。数据揭示了兄弟姐妹整体经历中的两个主要主题——压力源和应对方法,以及九个子主题。主要的兄弟姐妹压力源包括疾病前的压力源、PICU 环境、患病儿童的外貌、不确定性和父母的压力。兄弟姐妹主要通过分散注意力、社会支持和精神信仰来应对,并反思兄弟姐妹关系。报告称,来自朋友、家庭成员和社区的支持很有帮助。
探访 PICU 的兄弟姐妹可能会经历广泛的身体、情感和社会反应。
未来的研究在设计干预措施时应充分纳入兄弟姐妹的视角,以减轻 PICU 探访对家庭可能产生的潜在困扰影响。