Department of Psychosomatics and Psychiatry, and Children's Research Center, University Children's Hospital, Zurich, Switzerland.
Cancer Nurs. 2012 Mar-Apr;35(2):133-40. doi: 10.1097/NCC.0b013e31821e0c59.
Siblings of pediatric cancer patients have a higher risk of developing emotional, behavioral, and social problems. However, little is known about specific experiences of this population in the first time after diagnosis.
The purpose of this qualitative study was to describe the experiences of siblings of pediatric cancer patients in different areas of life in the first half-year after the cancer diagnosis.
Semistructured interviews were conducted with 7 siblings of pediatric cancer patients (ages 11-18 years). Siblings were asked about their experiences in the hospital, in school, in their family, with peers, and with the ill child. Content analysis was used to derive important themes from the interviews.
Twenty-three categories of siblings' experiences were identified from the data.
In all areas of life, siblings reported difficulties, such as absence of parents, dealing with the ill child's or other patients' suffering and appearance, or impaired school achievement. But the siblings also mentioned important resources such as peer relationship, helpful coping strategies, and increased family cohesion.
The results of the present study lead to a list of important topics in different areas of life that might be helpful for healthcare professionals to have in mind when meeting with siblings of cancer patients. Integration of these findings should serve to improve sibling support and develop standardized sibling interventions.
儿科癌症患者的兄弟姐妹有更高的风险出现情绪、行为和社交问题。然而，人们对这一人群在诊断后的头半年内的特定经历知之甚少。
本定性研究的目的是描述儿科癌症患者的兄弟姐妹在癌症诊断后半年内生活的不同领域的经历。
对 7 名儿科癌症患者的兄弟姐妹（年龄 11-18 岁）进行半结构式访谈。要求兄弟姐妹描述他们在医院、学校、家庭、同龄人以及与患病儿童方面的经历。使用内容分析从访谈中得出重要主题。
从数据中确定了 23 类兄弟姐妹的经历。
在生活的各个领域，兄弟姐妹都报告了一些困难，例如父母不在身边、处理患病儿童或其他患者的痛苦和外貌、学业成绩受损。但兄弟姐妹也提到了一些重要的资源，如同伴关系、有益的应对策略和增强的家庭凝聚力。
本研究的结果提供了生活不同领域的重要议题清单，这可能有助于医疗保健专业人员在与癌症患者的兄弟姐妹接触时牢记这些议题。整合这些发现应有助于改善对兄弟姐妹的支持，并制定标准化的兄弟姐妹干预措施。
