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在公共医疗体系中建立研究信息学项目:附模型文件的案例报告。

Establishing a research informatics program in a public healthcare system: a case report with model documents.

机构信息

Department of Population and Public Health Sciences, University of Southern California, Los Angeles, California, USA.

Department of Pediatrics, City of Hope, Duarte, California, USA.

出版信息

J Am Med Inform Assoc. 2022 Mar 15;29(4):694-700. doi: 10.1093/jamia/ocab226.

DOI:10.1093/jamia/ocab226
PMID:35289368
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8922175/
Abstract

While much is known about governance models for research informatics programs in academic medical centers and similarly situated cancer centers, community and public health systems have been less well-characterized. As part of implementing an enterprise research governance framework, leaders in the Los Angeles County Department of Health Services established a research informatics program, including research data warehousing. The strategy is focused on high-priority, patient-centered research that leverages the investment in health IT and an efficient, sustained contribution from 2 affiliated Clinical Translational Sciences Institutes. This case study describes the foundational governance framework and policies that were developed. We share the results of several years of planning, implementation, and operations of an academically funded research informatics service core embedded in a large, multicenter county health system. We include herein a Supplementary Appendix of governance documents that may serve as pragmatic models for similar initiatives.

摘要

虽然人们对学术医疗中心和类似的癌症中心的研究信息学计划的治理模式了解很多,但社区和公共卫生系统的情况却不太清楚。作为实施企业研究治理框架的一部分,洛杉矶县卫生服务部的领导人建立了一个研究信息学计划,包括研究数据仓库。该战略专注于以患者为中心的高优先级研究,利用对健康信息技术的投资以及两个附属临床转化科学研究所的高效、持续贡献。本案例研究描述了制定的基础治理框架和政策。我们分享了在大型多中心县卫生系统中嵌入的学术资助研究信息学服务核心的规划、实施和运营多年的结果。我们在此处包含一份治理文件的补充附录,这些文件可能为类似的计划提供实用模型。

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Bridging the gap between research, policy, and practice: Lessons learned from academic-public partnerships in the CTSA network.弥合研究、政策与实践之间的差距:从临床与转化科学奖(CTSA)网络中的学术-公共伙伴关系中汲取的经验教训。
J Clin Transl Sci. 2020 Mar 10;4(3):201-208. doi: 10.1017/cts.2020.23.
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