University of Washington Information School, Seattle, WA, USA.
AMIA Annu Symp Proc. 2022 Feb 21;2021:398-407. eCollection 2021.
Marginalized communities often mistrust research due to a history of unethical practice and limited community engagement. Research community engagement is expected with Indigenous communities, but few empirical studies have explored engagement in results dissemination, let alone using technology. Studies on using technology to disseminate results focus on health and research professional audiences. This paper discusses Alaska Native stakeholder values on technology to facilitate collaborative results dissemination. In this formative study, six participants engaged in participatory design activities on collaborative results dissemination. Sketches and interviews were analyzed deductively using a value-based codebook. Study findings highlight the importance of community context and transparency. Contextual awareness includes understanding local culture and power dynamics, acknowledging the diversity of cultural practices within Alaska Native groups. Transparency is tied to clear communication: encouraging active dialogue and providing alternatives to communicate research. Technology that supports such collaborative dissemination could increase trust and improve adoption of research-recommended actions.
边缘化社区由于历史上不道德的做法和有限的社区参与,常常对研究持怀疑态度。研究界期望与土著社区进行社区参与,但很少有实证研究探讨参与结果传播,更不用说使用技术了。关于使用技术传播结果的研究主要集中在健康和研究专业受众。本文讨论了阿拉斯加原住民利益相关者对促进协作结果传播的技术的看法。在这项形成性研究中,六名参与者参与了协作结果传播的参与式设计活动。使用基于价值的代码簿对草图和访谈进行了演绎分析。研究结果强调了社区背景和透明度的重要性。上下文意识包括了解当地文化和权力动态,承认阿拉斯加原住民群体内部文化实践的多样性。透明度与清晰的沟通有关:鼓励积极的对话,并提供替代沟通研究的方式。支持这种协作传播的技术可以提高信任度,并促进研究推荐行动的采用。