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智障儿童的中国父亲:他们对孩子的看法、家庭功能以及自身情感支持需求

Chinese fathers of children with intellectual disabilities: their perceptions of the child, family functioning, and their own needs for emotional support.

作者信息

Hu Xiaoyi

机构信息

Department of Special Education, Beijing Normal University, Beijing, China.

出版信息

Int J Dev Disabil. 2020 Feb 3;68(2):147-155. doi: 10.1080/20473869.2020.1716565. eCollection 2022.

Abstract

As more and more evidence accrues in support of family-centered approaches to disability services, parents' experiences raising children with disabilities is receiving increasing attention internationally. The literature on parents of children with disabilities, however-whether intellectual disability (ID) or other chronic health conditions (OCHC)-tends to focus on mothers as the primary research subject. To address the paucity of research focused on fathers' experiences of raising a child with disabilities, I surveyed over 4500 fathers of children with disabilities in Mainland China. The surveys focused on fathers' perceptions of their children, their perceptions of family functioning, and their perceptions of their own needs for emotional support. Results derived from statistical analyses of the data suggest that fathers tend to believe their children with ID are harder to raise than other children, and that they more often do things that irritate them and make them feel angry. Fathers of children with ID also tend to perceive their family functioning as somewhat problematic. Generally, these fathers are disinclined to seek emotional support from outside their families, although fathers from the majority Han population and fathers who have greater than high school education are more likely to seek support than are fathers from minority ethnic groups and fathers with lower educational background. Comparisons are made with fathers of children with OCHC. Implications of the findings are identified and lines of further research suggested.

摘要

随着越来越多的证据支持以家庭为中心的残疾服务方法,父母养育残疾子女的经历在国际上受到越来越多的关注。然而,关于残疾儿童父母的文献——无论是智力残疾(ID)还是其他慢性健康状况(OCHC)——往往将母亲作为主要研究对象。为了解决针对父亲养育残疾子女经历的研究匮乏问题,我对中国大陆4500多名残疾儿童的父亲进行了调查。这些调查聚焦于父亲对子女的看法、对家庭功能的看法以及对自身情感支持需求的看法。对数据进行统计分析得出的结果表明,父亲们倾向于认为他们患有智力残疾的孩子比其他孩子更难抚养,而且这些孩子更经常做一些激怒他们并使他们感到生气的事情。患有智力残疾孩子的父亲也倾向于认为他们的家庭功能存在一些问题。总体而言,这些父亲不愿意从家庭外部寻求情感支持,尽管汉族父亲以及受教育程度高于高中的父亲比少数民族父亲和教育程度较低的父亲更有可能寻求支持。文中还将这些父亲与患有其他慢性健康状况孩子的父亲进行了比较。研究结果的意义得到了明确,并提出了进一步的研究方向。

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