Fortuna Karen L, Myers Amanda, Brooks Jessica, Collins-Pisano Caroline, Marceau Skyla, Pratt Sarah, Lyons Kathy, Walker Robert, Thompson Shavon, Greene Kaycie, Pringle Willie, Carter Katina
Dartmouth College.
Brandeis University.
Patient Exp J. 2021;8(1):148-156. doi: 10.35680/2372-0247.1533.
Mounting scientific evidence over the past decades in the field of psychiatry has shown community engagement in research produces more relevant research, increased uptake of research findings, and better clinical outcomes. Despite the need for the integration of community engagement methodologies into the scientific method, doctoral and master's level competencies in the field of psychiatry commonly do not include dedicated training or coursework on community engagement methodologies. Without appropriate training or research experience, attempts to facilitate community engagement are often ineffective and burdensome and leave stakeholders feeling disenfranchised. The goal of this study was to co-produce an instrument designed to improve the quality of community engagement research practices by measuring the degree to which researchers have partnered with psychiatric patient stakeholders. The development of the included an iterative co-production process with psychiatric patient stakeholders and scientists, including item formulation, followed by two phases of cognitive interviews with psychiatric patient stakeholders to assess and refine instrument items. A pilot study was conducted to assess acceptability and feasibility. The pilot study of the suggested feasibility and acceptability among psychiatric patient stakeholders. The may be a valuable tool to enhance the quality of community engagement research practices within the field of psychiatry.
在过去几十年里，精神病学领域越来越多的科学证据表明，社区参与研究能产生更具相关性的研究成果、提高研究结果的采纳率并带来更好的临床效果。尽管需要将社区参与方法融入科学方法中，但精神病学领域的博士和硕士水平能力通常并不包括关于社区参与方法的专门培训或课程。如果没有适当的培训或研究经验，促进社区参与的尝试往往无效且繁琐，会让利益相关者感到被剥夺了权利。本研究的目的是共同制作一种工具，通过衡量研究人员与精神病患者利益相关者合作的程度来提高社区参与研究实践的质量。该工具的开发包括与精神病患者利益相关者和科学家进行迭代共同制作过程，包括项目制定，随后对精神病患者利益相关者进行两个阶段的认知访谈，以评估和完善工具项目。进行了一项试点研究以评估可接受性和可行性。该工具的试点研究表明在精神病患者利益相关者中具有可行性和可接受性。该工具可能是提高精神病学领域社区参与研究实践质量的宝贵工具。
