Fortuna Karen, Mbao Mbita, Kadakia Arya, Myers Amanda, Fischer Daniel, MacDonald Sandi, Brunchet Sheila, Hintz Iga, Rossom Rebecca, Brooks Jessica, Kalisa Joseph, Haragirimana Claver, Storm Marianne, Mois George, Umucu Emre, Almeida Margaret, Rivera Jennifer, Zisman Ilani Yaara, Venegas Maria, Walker Robert
Geisel School of Medicine, Dartmouth College, Hanover NH, USA.
Simmons University, Boston MA, USA.
Proc IEEE Glob Humanit Technol Conf. 2021 Oct;2021:188-194. doi: 10.1109/ghtc53159.2021.9612411. Epub 2021 Nov 30.
Community of Practice, a community-engagement method that encourages a group of people to interact regularly towards a common goal, may promote satisfying experiences in patient-outcomes research among marginalized populations. Peer support specialists are increasingly being involved in peer-informed mental health research due to their lived experiences of mental illness and are an asset in co-designing healthcare programs along with researchers. In 2015, ten scientists and ten mental health service users joined as a Community of Practice that trained to engage in patient-centered outcomes research. The group has so far has presented at 20 conferences, published three book chapters and 30 peer-reviewed publications, and developed two smartphone applications. Of note are the co-production of a smartphone application, a digital peer support certification program, an app decision support tool, and an instrument to assess the value of patient-research partnerships. Future research will assess the feasibility of incorporating more stakeholders to enhance research outcomes.
实践社区是一种社区参与方法,鼓励一群人为实现共同目标定期互动,它可能会促进边缘化人群在患者结局研究中获得令人满意的体验。同伴支持专家因其精神疾病的亲身经历,越来越多地参与到基于同伴知识的心理健康研究中,并且在与研究人员共同设计医疗保健项目方面是一项资产。2015年,十位科学家和十位心理健康服务使用者组成了一个实践社区,接受培训以开展以患者为中心的结局研究。该小组迄今为止已在20次会议上发表报告,出版了三章书籍内容和30篇同行评审出版物,并开发了两款智能手机应用程序。值得注意的是共同制作了一款智能手机应用程序、一个数字同伴支持认证项目、一个应用程序决策支持工具以及一种评估患者-研究伙伴关系价值的工具。未来的研究将评估纳入更多利益相关者以提高研究成果的可行性。