Market Access Manager, Ostomy and Wound Care, Coloplast.
Market Access Programme Manager, Payers and Evidence, Coloplast.
Br J Nurs. 2022 Mar 24;31(6):S30-S39. doi: 10.12968/bjon.2022.31.6.S30.
People with a stoma face many unique challenges. Leakage is a significant one but is not sufficiently discussed within the wider area of health and social care.
This study aimed to articulate and achieve consensus on the problems experienced by people with a stoma, particularly leakage, in the hope of encouraging conversations among patients, clinicians and policymakers on how to solve them.
Output from a modified Delphi panel, consisting of patient groups, was used to create a set of calls to action, with a particular focus on the issue of leakage.
Leakage has a large impact on daily life and can cause both physical and mental health difficulties. Peer support and specialist care can be offer considerable benefits in dealing with these.
There are significant unmet needs for equitable access to specialist stoma care and peer support, as well as information provision for non-specialist healthcare providers. The calls to action should be implemented.
造口患者面临许多独特的挑战。渗漏是其中一个重大问题，但在更广泛的健康和社会护理领域并未得到充分讨论。
本研究旨在阐明和达成共识，即造口患者所经历的问题，特别是渗漏问题，希望鼓励患者、临床医生和政策制定者之间就如何解决这些问题进行对话。
使用改良 Delphi 小组（由患者群体组成）的输出结果，制定了一系列行动呼吁，特别关注渗漏问题。
渗漏对日常生活有很大影响，并可能导致身体和心理健康问题。同伴支持和专业护理可以提供很大的帮助。
在获得平等的专业造口护理和同伴支持以及向非专业医疗保健提供者提供信息方面，存在着显著的未满足需求。应该实施这些行动呼吁。
