Institute of Social Medicine and Epidemiology, Brandenburg Medical School Theodor Fontane, Brandenburg an der Havel, Germany.
Faculty of Health Sciences Brandenburg, Brandenburg Medical School Theodor Fontane, Potsdam, Germany.
Health Expect. 2022 Aug;25(4):1444-1452. doi: 10.1111/hex.13483. Epub 2022 Mar 27.
The involvement of lay people in health care decision-making processes is now the norm in many countries. However, one important aspect of participation has not received sufficient attention in the past and remains underexplored: representation.
This paper explores the question of how public participation efforts in collective health care decision-making processes can attempt to aim for legitimate representation so that those individuals or groups not present can be taken into account in the decisions affecting them. This paper argues that to make decisions that effectively address those affected, representation needs to be seen as a relevant part of any participatory setting. To support this argument, the paper outlines the concepts of participation and representation and transfers them to health care contexts.
A conceptual reflection on responsiveness and the characteristics of representative actors in representative-participatory settings is introduced, which could provide actors planning to conduct participatory health care projects with tools to reflect on the merits and possible flaws of participatory constellations.
The paper contributes to improving public participation in health care decision-making.
在许多国家，现在非专业人士参与医疗决策过程已成为常态。然而，参与的一个重要方面在过去没有得到足够的重视，仍未得到充分探索：代表性。
本文探讨了在集体医疗保健决策过程中的公众参与努力如何试图争取合法的代表性，以便将那些未出席的个人或群体纳入影响他们的决策中。本文认为，为了做出能够有效解决受影响者问题的决策，代表性需要被视为任何参与性设置的一个相关部分。为了支持这一论点，本文概述了参与和代表性的概念，并将其转化为医疗保健背景。
本文引入了对回应性和代表性参与性设置中代表性行为者特征的概念性反思，这可为计划进行参与式医疗保健项目的行为者提供工具，以反思参与性组合的优点和可能的缺陷。
本文有助于改善医疗保健决策中的公众参与。
