患有智力残疾的儿童和青少年的母亲在第一次 COVID-19 封锁期间的经历。
The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period.
机构信息
The Tarentfort Centre, Kent and Medway NHS and Social Care Partnership Trust, Dartford, UK.
Division of Psychiatry, University College London, London, UK.
出版信息
J Appl Res Intellect Disabil. 2021 Nov;34(6):1421-1430. doi: 10.1111/jar.12884. Epub 2021 Mar 23.
BACKGROUND
Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
AIM
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
METHODS
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
RESULTS
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
CONCLUSIONS
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.
背景
最近的 COVID-19 封锁限制导致智障儿童及其照顾者获得教育、专业和社会支持系统的机会减少。
目的
本研究旨在深入了解智障儿童的母亲在 2020 年首次封锁期间的应对方式。
方法
对 8 名智障儿童的母亲进行了访谈。对这些访谈的录音进行了主题分析。
结果
确定了三个主要主题：承担负担；压力时期；以及拥抱变化和展望未来。
结论
所有母亲都经历了负担和压力的增加。然而，一些母亲也描述了封锁条件对她们以及她们孩子的幸福感和行为产生的一些积极影响。这些发现是根据（应用研究杂志在智力残疾，33，2020，1523）关于父母应对的调查结果进行讨论的，并提出了在大流行期间提供未来服务的建议。
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