Department of Nephrology, Dialysis and Internal Medicine, Warsaw Medical University, Poland.
Adv Clin Exp Med. 2022 Jul;31(7):739-748. doi: 10.17219/acem/147106.
It is widely accepted that patients with chronic kidney disease (CKD) should play an active role in the selection of renal replacement therapy (RRT) option. However, patients' knowledge about CKD and treatment options is limited. The implementation of structured education program and shared decision-making may result in a better preparation to RRT, more balanced choice of dialysis modalities and better access to kidney transplantation (TX).
The aim of this long-term study was to assess the impact of formalized Predialysis Education Program (fPEP) on knowlege on RRT options, as well as on selected and definitive therapy.
The study included 435 patients (53% men, mean age 60 years) with CKD stage 4 and 5, participating in fPEP at our center. The program included at least 3 visits, during which balanced information about all RRT options was presented and self-care and informed decision-making were encouraged. The knowledge about RRT options before and after fPEP attendance, and selected and definitive RRT options were assessed.
Ninety-two percent of patients received prior nephrology care. After fPEP completion, in most patients, the knowledge about CKD and RRT options and selected preferred modality improved - 40% of participants chose hemodialysis (HD), 32% peritoneal dialysis (PD) and 18% TX. During the observation period, 4% of patients died before commencement of dialysis, 2.7% received preemptive kidney transplant, 8.6% were placed on transplant waiting list, and 94% started dialysis (30% PD and 70% HD). Among those who chose PD, 69% started PD and 24% started HD; the leading causes of the discrepancy between choosing and receiving PD was the deterioration in clinical condition (50%) and change of decision (32%).
The fPEP increases CKD patients' knowledge on RRT methods. The implementation of a decision-making process based on fPEP leads to a satisfying distribution between modalities, with a good concordance between chosen and definitive modality.
人们普遍认为,慢性肾脏病(CKD)患者应在选择肾脏替代治疗(RRT)方案中发挥积极作用。然而,患者对 CKD 和治疗方案的了解有限。实施结构化教育计划和共享决策可能会使患者更好地为 RRT 做准备,更平衡地选择透析方式,并更方便地进行肾移植(TX)。
本长期研究旨在评估规范化透析前教育计划(fPEP)对 RRT 选择方案的认知,以及对选择和确定治疗方案的影响。
该研究纳入了在我院参加 fPEP 的 435 名 CKD 4 期和 5 期患者(53%为男性,平均年龄 60 岁)。该计划包括至少 3 次就诊,在此期间,向患者提供了关于所有 RRT 选择方案的均衡信息,并鼓励患者自我护理和知情决策。评估患者参加 fPEP 前后对 RRT 选择方案的了解情况,以及选择和确定的 RRT 方案。
92%的患者曾接受过肾脏科治疗。在完成 fPEP 后,大多数患者对 CKD 和 RRT 方案的了解以及选择的首选方案有所改善——40%的患者选择血液透析(HD),32%选择腹膜透析(PD),18%选择 TX。在观察期间,4%的患者在开始透析前死亡,2.7%的患者接受了抢先肾移植,8.6%的患者进入了移植等待名单,94%的患者开始接受透析(30%PD 和 70%HD)。在选择 PD 的患者中,69%的患者开始 PD,24%的患者开始 HD;选择 PD 与接受 PD 之间存在差异的主要原因是临床状况恶化(50%)和决策改变(32%)。
fPEP 提高了 CKD 患者对 RRT 方法的认知。基于 fPEP 实施决策过程可使不同透析方式之间得到满意的分配,并使所选方案与实际方案具有良好的一致性。