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通过改善晚期肾病患者教育来提高家庭透析的采用率:行动呼吁。

Increasing the adoption of home dialysis through improved advanced kidney care patient education: a call for action.

作者信息

Lundström Ulrika Hahn, Meeus Gert, Aronsen Tommy, Clause Anne-Lorraine, Finderup Jeanette, Finne Patrik J, Kampmann Jan Dominik, Lange Jacek, McCarthy Kate, Nohra Rita, Stompòr Tomasz, Wood Eleri, Lichodziejewska-Niemierko Monika, Jacobson Stefan H

机构信息

Division of Renal Medicine, Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.

Department of Nephrology, AZ Groeninge Hospital, Kortrijk, Belgium.

出版信息

Clin Kidney J. 2025 Mar 27;18(4):sfaf087. doi: 10.1093/ckj/sfaf087. eCollection 2025 Apr.

Abstract

BACKGROUND

Home dialysis modalities have several advantages yet remain underused in Europe. A minority of people with kidney failure opt for home dialysis, although many more could be suitable. To improve home dialysis uptake, advanced kidney care patient education is essential. The aim was to examine the association of national guidelines for advanced kidney care patient education with home dialysis prevalence and incidence across Europe.

METHODS

This call for action followed a consensus meeting in Copenhagen, Denmark, in June 2023. The participating professionals had extensive experience in advanced kidney care and home dialysis. We used data from the European Renal Association registry 2021 to examine the association of available national guidelines for advanced kidney care education with home dialysis prevalence and incidence in Europe.

RESULTS

In the European dialysis population, home dialysis prevalence is 10.5% and incidence is 13.3%. The organization of advanced kidney care and patient education differ. The availability of national guidelines for advanced kidney care patient education is associated with home dialysis uptake. The prevalence of home dialysis is significantly higher in countries with versus without national guidelines [20.9 versus 7.9%; odds ratio 1.398 (confidence interval 1.115-1.754),  = .004].

CONCLUSION

Home dialysis prevalence and incidence vary in Europe. The availability of national guidelines for advanced kidney care patient education for professionals is associated with a higher prevalence and incidence of home dialysis. Coordinated action is needed to support advanced kidney care patient education as part of nephrology care to improve kidney care, in order to ensure that the right patient is on the right modality and increase access to home dialysis.

摘要

背景

家庭透析模式具有多项优势,但在欧洲的使用率仍然较低。少数肾衰竭患者选择家庭透析,尽管更多患者可能适合这种方式。为了提高家庭透析的接受率,先进的肾脏护理患者教育至关重要。目的是研究欧洲各国先进肾脏护理患者教育指南与家庭透析患病率和发病率之间的关联。

方法

此次行动呼吁是在2023年6月于丹麦哥本哈根举行的一次共识会议之后提出的。参与的专业人员在先进肾脏护理和家庭透析方面拥有丰富经验。我们使用了欧洲肾脏协会2021年登记处的数据,以研究现有的各国先进肾脏护理教育指南与欧洲家庭透析患病率和发病率之间的关联。

结果

在欧洲透析人群中,家庭透析患病率为10.5%,发病率为13.3%。先进肾脏护理和患者教育的组织方式各不相同。各国先进肾脏护理患者教育指南的可获得性与家庭透析的接受率相关。有国家指南的国家家庭透析患病率显著高于没有国家指南的国家[20.9%对7.9%;优势比1.398(置信区间1.115 - 1.754),P = 0.004]。

结论

欧洲家庭透析的患病率和发病率各不相同。为专业人员提供先进肾脏护理患者教育的国家指南与家庭透析较高的患病率和发病率相关。需要采取协调行动,支持将先进肾脏护理患者教育作为肾脏病护理的一部分,以改善肾脏护理,确保合适的患者采用合适的透析方式,并增加家庭透析的可及性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8f36/11986811/9912cb1c3bc9/sfaf087fig1.jpg

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