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发展、培养和维持以青少年和青年为中心的关爱文化。

Developing, Nurturing, and Sustaining an Adolescent and Young Adult-Centered Culture of Care.

机构信息

8964University College London Hospitals NHS Foundation Trust, London, UK.

School of Health Sciences, Faculty of Health and Medical Sciences, University of Surrey, Guildford, Surrey.

出版信息

Qual Health Res. 2022 May;32(6):956-969. doi: 10.1177/10497323221084910. Epub 2022 Mar 31.

DOI:10.1177/10497323221084910
PMID:35356832
Abstract

Adolescents and young adults have unique needs which differ from those of children or adults. In the United Kingdom, we have dedicated services, which are diverse in how they are managed and delivered. A multiple-case study was conducted in young people's cancer services in four geographical regions of England. Data collection included: semi-structured interviews with healthcare professionals ( = 41) and young people ( = 29); and observation (total = 120 hours). Thematic analysis was used to synthesize and interpret five emerging themes describing the way a culture of adolescent and young adult-specific care developed. To develop a cultural attitude which embraced and promoted core values, leadership was needed, as well as high patient volume accessing a service. Time was essential, an adolescent and young adult-centered culture of care does not happen overnight, it needs time and dedicated staff to evolve, but once in place, services have a significant impact on the experience of care.

摘要

青少年和年轻人有独特的需求,与儿童或成年人不同。在英国,我们有专门的服务,它们在管理和提供方式上多种多样。一项多案例研究在英格兰四个地区的青少年癌症服务中进行。数据收集包括:对医疗保健专业人员(=41 人)和年轻人(=29 人)进行半结构化访谈;以及观察(总计 120 小时)。主题分析用于综合和解释五个新兴主题,描述了一种青少年和年轻人特定护理文化的发展方式。为了培养一种接受和促进核心价值观的文化态度,需要领导力,以及大量的患者接受服务。时间是必不可少的,以青少年和年轻人为中心的护理文化不是一夜之间形成的,它需要时间和专门的工作人员来发展,但一旦建立起来,服务对护理体验就会产生重大影响。

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Young people's opinions of cancer care in England: the BRIGHTLIGHT cohort.
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