Morton Emma, Nicholas Jennifer, Yang Linda, Lapadat Laura, Barnes Steven J, Provencher Martin D, Depp Colin, Chan Michelle, Kulur Rhea, Michalak Erin E
Department of Psychiatry, University of British Columbia, 420-5950 University Boulevard, Vancouver, BC, V6T 1Z3, Canada.
Orygen, Parkville, VIC, Australia.
Int J Bipolar Disord. 2022 Apr 4;10(1):10. doi: 10.1186/s40345-022-00256-6.
Individuals with bipolar disorder (BD) are increasingly turning to smartphone applications (apps) for health information and self-management support. While reviews have raised concerns regarding the effectiveness and safety of publicly available apps for BD, apps surveyed may not reflect what individuals with BD are using. The present study had two aims: first, to characterize the use of health apps to support mood and sleep amongst people with BD, and second, to evaluate the quality, safety and functionality of the most commonly used self-management apps.
A web-based survey was conducted to explore which apps people with BD reported using to support self-management of mood and sleep. The characteristics of the most commonly nominated apps were described using a standardized framework, including their privacy policy, clinical foundations, and functionality.
Respondents (n = 919) were 77.9% female with a mean age of 36.9 years. 41.6% of participants (n = 382) reported using a self-management app to support mood or sleep. 110 unique apps were nominated in relation to mood, and 104 unique apps nominated in relation to sleep; however, most apps were only mentioned once. The nine most frequently nominated apps related to mood and sleep were subject to further evaluation. All reviewed apps offered a privacy policy, however user control over data was limited and the complexity of privacy policies was high. Only one app was developed for BD populations. Half of reviewed apps had published peer-reviewed evidence to support their claims of efficacy, but little research was specific to BD.
Findings illustrate the potential of smartphone apps to increase the reach of psychosocial interventions amongst people with BD. Apps were largely created by commercial developers and designed for the general population, highlighting a gap in the development and dissemination of evidence-informed apps for BD. There may be risks in using generic health apps for BD self-management; clinicians should enquire about patients' app use to foster conversations about their particular benefits and limitations.
双相情感障碍(BD)患者越来越多地使用智能手机应用程序(应用)来获取健康信息和自我管理支持。虽然已有综述对公开可用的双相情感障碍应用的有效性和安全性提出了担忧,但所调查的应用可能无法反映双相情感障碍患者实际使用的情况。本研究有两个目的:第一,描述双相情感障碍患者使用健康应用来支持情绪和睡眠的情况;第二,评估最常用的自我管理应用的质量、安全性和功能。
开展了一项基于网络的调查,以探究双相情感障碍患者报告使用哪些应用来支持情绪和睡眠的自我管理。使用标准化框架描述了最常被提及的应用的特征,包括其隐私政策、临床依据和功能。
受访者(n = 919)中77.9%为女性,平均年龄36.9岁。41.6%的参与者(n = 382)报告使用自我管理应用来支持情绪或睡眠。与情绪相关的被提名的独特应用有110个,与睡眠相关的有104个;然而,大多数应用仅被提及一次。对与情绪和睡眠最常被提名的九个应用进行了进一步评估。所有被审查的应用都提供了隐私政策,但用户对数据的控制权有限,且隐私政策的复杂性较高。只有一个应用是针对双相情感障碍人群开发的。一半的被审查应用发表了经过同行评审的证据来支持其疗效声明,但针对双相情感障碍的具体研究很少。
研究结果表明智能手机应用有潜力扩大双相情感障碍患者心理社会干预的覆盖范围。应用大多由商业开发者创建,是为普通人群设计的,这凸显了针对双相情感障碍的循证应用在开发和传播方面的差距。使用通用健康应用进行双相情感障碍自我管理可能存在风险;临床医生应询问患者的应用使用情况,以促进关于其特定益处和局限性的讨论。