School of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia.
Private Practitioner, Sydney, NSW 2000, Australia.
Int J Environ Res Public Health. 2022 Mar 24;19(7):3881. doi: 10.3390/ijerph19073881.
Lived experience research is potentially useful for assisting the recovery journeys of people experiencing mental health challenges, when presented in user-friendly formats. Consumer peer workers are ideally placed to introduce such resources to the people they work with. This study sought to explore the perspectives of expert consumer peer workers on the potential use of lived experience research resources in peer work practice. In particular: (1) what research topics would be most useful; and (2) what considerations are important for developing user-friendly and useful resources using findings from this research. A hybrid Delphi study was conducted. Eighteen expert peer workers participated in online group interviews, which included a semi-structured discussion and modified nominal group technique. These were followed by two rounds of surveys, which focused on prioritising the identified topics. Participants identified 47 topics suitable for lived experience research resources, 42 of which reached consensus as useful for consumers. A priority list of topics for use in peer work was identified through examination and grouping of peer worker rankings of the usefulness of resources for their work with consumers. The highest priority topics were as follows: developing and maintaining social networks; how peer workers can support consumers in their recovery journey; having choice with medications and participating in the decision-making process; and knowing your rights and responsibilities. Participants noted, however, that the usefulness of each topic ultimately depended on individual consumer's needs. They highlighted that a variety of formats and presentation were required to reach diverse consumer groups.
生活体验研究在以用户友好的格式呈现时,对于协助经历心理健康挑战的人恢复旅程可能非常有用。消费者同行工作者是将此类资源引入他们所服务的人群的理想人选。本研究旨在探讨专家消费者同行工作者对在同行工作实践中使用生活体验研究资源的潜在用途的看法。特别是:(1)哪些研究主题最有用;(2)考虑哪些因素对于使用该研究的发现开发用户友好且有用的资源很重要。进行了混合 Delphi 研究。18 名专家同行工作者参加了在线小组访谈,其中包括半结构化讨论和修改后的名义小组技术。随后进行了两轮调查,重点是对确定的主题进行优先排序。参与者确定了 47 个适合生活体验研究资源的主题,其中 42 个被认为对消费者有用。通过检查和分组同行工作者对资源在其与消费者工作中的有用性的排名,确定了在同行工作中使用的主题优先列表。优先级最高的主题如下:发展和维持社交网络;同行工作者如何在康复过程中支持消费者;在药物方面有选择并参与决策过程;以及了解自己的权利和责任。然而,参与者指出,每个主题的有用性最终取决于每个消费者的需求。他们强调,需要各种格式和呈现方式来满足不同的消费者群体。