Department of Otolaryngology, College of Medicine, University of Tennessee Health Science Center, Memphis, Tennessee, USA.
LeBonheur Children's Inpatient Rehabilitation Services, Memphis, Tennessee, USA.
Oral Dis. 2022 Jul;28(5):1412-1417. doi: 10.1111/odi.14213. Epub 2022 May 4.
We emphasize the benefits of a multidisciplinary team approach to the systemic management of patients with cleft lip and cleft palate (CL/CP) and their families. An ideal team offers support to families at each stage of their child's development and adapts to address new issues that are encountered throughout growth. We suggest the addition of a registered dietitian to the initial phase of the care team to ensure the child consumes adequate macronutrient intake, and to maximize growth and development. An ideal cleft palate care team focuses on a comprehensive, collaborative, and family-centered approach to the complex medical and surgical needs of infants with CL/CP as they grow to young adulthood. Although care teams may differ slightly depending on context and location, there are central tenets that make an ideal team. After reviewing CL/CP care team guidelines and recommendations from a variety of different countries, this article reflects what an ideal organization structure and care team composition could be comprised of.
我们强调多学科团队方法对唇腭裂（CL/CP）患者及其家庭的系统管理的益处。一个理想的团队在孩子发展的每个阶段为家庭提供支持，并适应解决成长过程中遇到的新问题。我们建议在护理团队的初始阶段增加注册营养师，以确保孩子摄入足够的宏量营养素，并最大限度地促进生长和发育。一个理想的腭裂护理团队专注于为患有 CL/CP 的婴儿提供全面、协作和以家庭为中心的方法，以满足他们在成长为年轻成人过程中的复杂医疗和手术需求。尽管护理团队可能因背景和地点的不同而略有差异，但有一些核心原则可以构成一个理想的团队。在审查了来自不同国家的 CL/CP 护理团队指南和建议后，本文反映了一个理想的组织结构和护理团队组成可能包括哪些内容。
