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用于听力受损儿童的新生儿辅助远程康复(T.A.T.A.网络应用程序):先天性听力损失早期干预的以家庭为中心的护理模式

NeonaTal Assisted TelerehAbilitation (T.A.T.A. Web App) for Hearing-Impaired Children: A Family-Centered Care Model for Early Intervention in Congenital Hearing Loss.

作者信息

Landolfi Emma, Continisio Grazia Isabella, Del Vecchio Valeria, Serra Nicola, Burattini Ernesto, Conson Massimiliano, Marciano Elio, Laria Carla, Franzè Annamaria, Caso Antonio, Fetoni Anna Rita, Malesci Rita

机构信息

Unit of Audiology, Department of Neuroscience, Reproductive Sciences and Dentistry, University of Naples Federico II, via Pansini 5, 80131 Naples, Italy.

Department of Public Health, University Federico II of Naples, via Pansini 5, 80131 Naples, Italy.

出版信息

Audiol Res. 2022 Mar 28;12(2):182-190. doi: 10.3390/audiolres12020021.

Abstract

BACKGROUND

An early hearing detection and intervention program (EHDI) is the first step for the habilitation of children with permanent hearing impairment (PHI). Actually, early intervention programs have increasingly shifted toward family involvement, emphasizing that the child's family should take an active role in the habilitation process. Therefore, familiar empowerment is the best way to improve a child's emerging abilities. The aim of this study was to investigate parental self-efficacy beliefs and involvement as well as the language skills of deaf or hard of hearing DHH children who were habilitated with hearing aids and followed using the T.A.T.A web app (NeonaTal Assisted TelerehAbilitation), an example of asynchronous telepractice.

METHODS

The study describes the early stages of the habilitation program of 15 PHI children followed through the T.A.T.A. web app, which empowers families through a weekly questionnaire submitted during the first 270 to 360 days of their child's life, for 14 weeks. The family involvement rate scale (FIRS) was used to evaluate parental compliance, and all children received in-person visits at the beginning and at the end of the training period.

RESULTS

The children showed greater auditory perceptual skills at the end of the training period on the basis of both the Infant Listening Progress Profile (ILiP) score and the Categories of Auditory Performance (CAP) and FIRS scales. In other words, the auditory skills improved with age as well as with parental participation.

CONCLUSIONS

The T.A.T.A. web app promotes a proactive management and a tailored habilitation through an active familiar involvement, easily achieved in clinical routine and in emergency settings without additional costs.

摘要

背景

早期听力检测与干预计划(EHDI)是对永久性听力障碍(PHI)儿童进行 habilitation 的第一步。实际上,早期干预计划已越来越倾向于家庭参与,强调儿童家庭应在 habilitation 过程中发挥积极作用。因此,家庭赋权是提高儿童新出现能力的最佳方式。本研究的目的是调查使用 T.A.T.A 网络应用程序(新生儿辅助远程康复,一种异步远程实践的示例)对佩戴助听器进行 habilitation 并随访的聋或重听(DHH)儿童的父母自我效能信念和参与情况以及语言技能。

方法

该研究描述了 15 名 PHI 儿童通过 T.A.T.A. 网络应用程序进行 habilitation 计划的早期阶段,该应用程序通过在孩子出生后的前 270 至 360 天每周提交问卷的方式,持续 14 周,使家庭获得赋权。使用家庭参与率量表(FIRS)评估父母的依从性,所有儿童在训练期开始和结束时均接受了面对面访问。

结果

根据婴儿听力进展概况(ILiP)评分以及听觉表现类别(CAP)和 FIRS 量表,儿童在训练期结束时表现出更强的听觉感知技能。换句话说,听觉技能随着年龄以及父母的参与而提高。

结论

T.A.T.A. 网络应用程序通过积极的家庭参与促进了主动管理和量身定制的 habilitation,在临床常规和紧急情况下均可轻松实现,且无需额外费用。

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